C09579
Brief Pain Inventory (BPI) - average pain rating scale
Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09587
Brief Pain Inventory (BPI) - pain relations interference scale
Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09580
Brief Pain Inventory (BPI) - current pain rating scale
Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09588
Brief Pain Inventory (BPI) - pain sleep interference scale
Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09581
Brief Pain Inventory (BPI) - treatment received text
Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09589
Brief Pain Inventory (BPI) - pain enjoyment interference scale
Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09582
Brief Pain Inventory (BPI) - relief received percentage number
Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09575
Brief Pain Inventory (BPI) - other pain indicator
Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09583
Brief Pain Inventory (BPI) - pain general activity interference scale
Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09576
Brief Pain Inventory (BPI) - pain area indicator
On the diagram, shade in the areas where you feel pain. Put an X on the area that hurts the most, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09584
Brief Pain Inventory (BPI) - pain mood interference scale
Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09577
Brief Pain Inventory (BPI) - worst pain rating scale
Scale indicating the rating of the worst pain, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09585
Brief Pain Inventory (BPI) - pain walking ability interference scale
Scale assessing how much the pain has interfered with walking ability, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09578
Brief Pain Inventory (BPI) - least pain rating scale
Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09586
Brief Pain Inventory (BPI) - pain normal work interference scale
Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00033
Race USA maternal category
Race(s) the participant/subject's mother most closely identifies with
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19518
Country of origin name
Name of patient/participant's country of origin
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00004
Birth country ISO code
Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00035
Gender type
Self-reported gender of the participant/subject
Core
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00007
Birth date
Date (and time, if applicable and known) the participant/subject was born
Core
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C10675
Country of origin maternal name
Mother's country or countries of origin
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00020
Ethnicity USA category
Category of ethnicity the participant/subject most closely identifies with
Core
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C11136
Country of origin paternal name
Father's country or countries of origin
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00021
Ethnicity USA paternal category
Ethnicity the participant/subject's father most closely identifies with
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C11138
Country of origin paternal ISO code
The ISO 3166-1 alpha-2 code for the participant's father's country of origin
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy