C09580
Brief Pain Inventory (BPI) - current pain rating scale
Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C08502
36-item Short Form Health Survey (SF-36) - Now heath score
Score of surveyee-reported present general heath compared to a year ago as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12798
Gene missense nonsense variant or point mutation location type
Type of location of the missense/nonsense variant or point mutation
Supplemental
Mutation Analysis
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C10556
Pregnant ever indicator
Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C10865
Dynamometry hand held muscle test performed date
Date (and time, if applicable and known) the hand held dynamometry was performed on the participant/subject
Supplemental
Hand Held Dynamometry
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09588
Brief Pain Inventory (BPI) - pain sleep interference scale
Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00015
Education year count
Number of years of education completed (age 5 and beyond)
Supplemental
Social Status
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12832
ECG atrioventricular block second degree status
Status of second degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported
Supplemental
Electrocardiogram (ECG)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19644
Img first follow up scan status
The status of whether this is the first scan or a follow up scan
Supplemental
Magnetic Resonance Imaging (MRI)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C17999
Tocolytic agents required during preterm specification text
Text specifying the tocolytic agents the participant/subject required during preterm labor
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12806
Gene protein variant or mutation name
The Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation
Supplemental
Mutation Analysis
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12458
Polysomnography transcutaneous carbon dioxide non-REM sleep value
Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during non-rapid eye movement (REM) sleep
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16015
Prenatal testing type
The type of prenatal testing that was performed for the current pregnancy
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18777
ECG heart rhythm result other text
The free-text field related to 'ECG heart rhythm result type' specifying other text. Type of heart rhythm apparent on the electrocardiogram (EKG) being reported
Supplemental
Electrocardiogram (ECG)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19627
FSHD prenatal testing text
Text specifying results from FSHD prenatal testing that was performed on the participant/subject
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C17893
Gene missense nonsense variant or point mutation location other text
Text about missense/nonsense variant or point mutation at locations other than the exon and intron
Supplemental
Mutation Analysis
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C17877
Polysomnography end time clock type
Type of clock used to record the time at which the sleep study ended
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16026
Pregnancy prior history loss indicator
Indicator of whether a miscarriage ( 20 weeks) occurred in any previous pregnancy
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12426
Polysomnography study type
Type of polysomnography (sleep study) that is being reported
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12175
Dual X-ray absorptiometry performed date
The date the Dual X-ray absorptiometry (DEXA) was performed
Supplemental
Dual X-Ray Absorptiometry (DXA)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19641
Polysomnography arousal index type total sleep event count
Count of total sleep events recorded for the type of arousal index being reported
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16048
Tocolytic agents required during preterm labor indicator
Indicator of whether medications used to suppress premature labor were required during preterm labor
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12434
Polysomnography apnea hypopnea index type non-REM event count
Count of non-rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12195
Dual X-ray absorptiometry left arm lean value
Left arm lean muscle mass for dual X-ray absorptiometry (DEXA)
Supplemental
Dual X-Ray Absorptiometry (DXA)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C04509
ECG PR interval
Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (EKG) being reported
Supplemental
Electrocardiogram (ECG)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy