C10171
Trial number
The number representing the sequence for any repeated measure test or assessment when it is performed multiple times
Supplemental
Grip Strength
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12414
Pulmonary blood gas pH value
The numeric value of the blood gas pH measurement
Supplemental
Measures of Gas Exchange
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12784
Variant mutational analysis performed family member indicator
Whether the mutational analysis was performed on a family member
Supplemental
Mutation Analysis
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00319
Medical history condition ongoing indicator
Indicator of whether a medical condition/disease experienced by the participant/subject is ongoing
Supplemental
Medical History
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12403
Respiratory oxygen use schedule type
Type of schedule of supplemental oxygen use
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C08536
36-item Short Form Health Survey (SF-36) - Excellent health score
Score of how true or false surveyee perceived the statement: My health is excellent, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12197
Dual X-ray absorptiometry left leg lean value
Left leg lean muscle mass for dual X-ray absorptiometry (DEXA)
Supplemental
Dual X-Ray Absorptiometry (DXA)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18816
Manual muscle testing position other text
The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment
Supplemental
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16060
Weight delivery mother unit of measure
Units for the measurement of the participant's/subject's weight at the time she gave birth
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12444
Polysomnography blood oxygen saturation drop hour total sleep count
Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during total sleep time
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C17876
Pulmonary function test not done text
If the PFT was not performed on the participant/subject, specify other reason
Supplemental
Pulmonary Function Testing
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12371
Respiratory Intervention-support device brand name
The brand name of the respiratory support or assisted ventilation device used by the participant/subject, as part of the Respiratory Interventions form
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12826
ECG arrhythmia ventricular morphology type
Type of morphology of any ventricular arrhythmia apparent on the electrocardiogram (ECG) being reported
Supplemental
Electrocardiogram (ECG)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C08244
Imaging slice thickness value
Value of the thickness of the slice measured in millimeters (mm)
Supplemental
Magnetic Resonance Imaging (MRI)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C17993
Prenatal test text
Text notes of any comments regarding the selected prenatal testing type
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12452
Polysomnography end tidal carbon dioxide non-REM sleep value
Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during non-rapid eye movement (REM) sleep
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12834
ECG bundle branch block incomplete status
Status of incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported
Supplemental
Electrocardiogram (ECG)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19646
MRI available sequence type
Type of sequences available in MRI
Supplemental
Magnetic Resonance Imaging (MRI)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18001
Newborn complication child specification text
Text specifying other newborn complications
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12808
Gene sequenced with no variant or mutation indicator
Whether there are additional genes sequenced with no variants or mutations detected
Supplemental
Mutation Analysis
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12460
Polysomnography end tidal or transcutaneous carbon dioxide increase indicator
Indicator of whether there was an increase of more than 10 millimeters of mercury (mmHg) in end-tidal CO2 or transcutaneous CO2 at any time during sleep
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16017
Prenatal testing result
Results of the selected prenatal testing type
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19629
Breastfeeding Absent text
Text describing the reason why the mother did not breastfeed
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C17895
Genes sequenced with no mutations text
Text about additional genes sequenced with no mutations detected
Supplemental
Mutation Analysis
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C17879
Polysomnography start time clock type
Type of clock used to record the time at which the sleep study began
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy