CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 451
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17995 Pregnancy infection illness text

Text specifying any infections or illnesses the participant/subject experienced during this pregnancy

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12802 Gene variant mutation mRNA analysis performed indicator

Indicator of whether messenger ribonucleic acid (mRNA) analysis was performed

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12454 Polysomnography transcutaneous carbon dioxide measured indicator

Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C11078 Delivery mode type

Type of delivery mode of the neonate

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12836 ECG left anterior hemiblock status

Status of left anterior hemiblock apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18829 Delivery mode induced other text

The free-text field related to 'Delivery mode type' for induced delivery mode. Type of delivery mode of the neonate

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12462 Polysomnography heart rate total sleep value

Value, in beats per minute, of the selected heart rate (HR) measurement during total sleep

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16020 Pregnancy infection illness indicator

Indicator of whether there were any infections/illnesses that occurred during this pregnancy

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests and Tracking False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19500 Assessment performed date

The date of assessment of the examination being performed

 Supplemental Goniometry False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16040 Pregnancy fetus normal indicator

Indicates whether the fetus was normal

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

 Supplemental Laboratory Tests and Tracking False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12430 Polysomnography sleep total duration

Duration for which the participant/subject was asleep during the sleep study

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19670 Family history diagnosis age unknown status

Status related to whether the participant knows the age of the relative when diagnosed

 Supplemental Family History False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12401 Respiratory oxygen flow rate

The flow rate value of supplemental oxygen

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16053 Birth length child value

Value of the length of the participant's/subject's child at birth

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12785 Gene variant mutation detected result type

Type of gene variant or mutation detected

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12438 Polysomnography blood oxygen saturation mean awake measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) while the participant/subject was awake, from the polysomnography being reported

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17921 Dual X-ray absorptiometry current corticosteroid use indicator

Whether or not the participant is currently taking any corticosteroids for Dual X-ray absorptiometry (DEXA)

 Supplemental Dual X-Ray Absorptiometry (DXA) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

 Supplemental Magnetic Resonance Imaging (MRI) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Hand Held Dynamometry False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

 Supplemental Demographics False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 301 - 325 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.