CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 451
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16017 Prenatal testing result

Results of the selected prenatal testing type

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17895 Genes sequenced with no mutations text

Text about additional genes sequenced with no mutations detected

Supplemental Mutation Analysis Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17879 Polysomnography start time clock type

Type of clock used to record the time at which the sleep study began

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16028 Pregnancy prior history toxic exposure type

Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Supplemental Laboratory Tests and Tracking Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12428 Polysomnography study end time

Time at which the sleep study ended

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19667 Family history diagnosis type

Type of diagnosis method for relative

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16050 Phenotypic sex child type

Sex of the participant/subject's child based on physical examination

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12783 Variant mutational analysis results available indicator

Whether the variant or mutational analysis results are available on this participant/ subject

Supplemental Mutation Analysis Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12436 Polysomnography blood oxygen saturation mean REM sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) during rapid eye movement (REM) sleep from the polysomnography being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's/subject's medical history

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12412 Pulmonary gas exchange end tidal transcutaneous carbon dioxide value

The value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16060 Weight delivery mother unit of measure

Units for the measurement of the participant's/subject's weight at the time she gave birth

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12791 Gene exon last deleted duplicated name

Identify exon last deleted or duplicated

Supplemental Mutation Analysis Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12444 Polysomnography blood oxygen saturation drop hour total sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during total sleep time

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18243 Symptom first appear age type

Type of age of the participant/subject at first symptom appearance

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12420 Pulmonary gas exchange oxygen saturation less 90 percent value

The percent of time the participant/subject's oxygen saturation level (SpO2) is less then 90 percent while the participant/subject is sleeping

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12826 ECG arrhythmia ventricular morphology type

Type of morphology of any ventricular arrhythmia apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17993 Prenatal test text

Text notes of any comments regarding the selected prenatal testing type

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12800 Gene missense nonsense variant or point mutation insertion deletion type

The insertion deletion type of the missense/nonsense variant or point mutation

Supplemental Mutation Analysis Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12452 Polysomnography end tidal carbon dioxide non-REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during non-rapid eye movement (REM) sleep

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Supplemental Social Status Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 251 - 275 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.