CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 451
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19627 FSHD prenatal testing text

Text specifying results from FSHD prenatal testing that was performed on the participant/subject

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12395 Respiratory pressure support value

Value of the pressure support

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Grip Strength Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12175 Dual X-ray absorptiometry performed date

Date the dual X-ray absorptiometry (DXA) was performed

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19641 Polysomnography arousal index type total sleep event count

Count of total sleep events recorded for the type of arousal index being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12403 Respiratory oxygen use schedule type

Type of schedule of supplemental oxygen use

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16060 Weight delivery mother unit of measure

Units for the measurement of the participant's/subject's weight at the time she gave birth

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12791 Gene exon last deleted duplicated name

Name of the exon last deleted or duplicated

Supplemental Mutation Analysis Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12444 Polysomnography blood oxygen saturation drop hour total sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during total sleep time

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18243 Symptom first appear age type

Type of age of the participant/subject at first symptom appearance

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12420 Pulmonary gas exchange oxygen saturation less 90 percent value

The percent of time the participant/subject's oxygen saturation level (SpO2) is less then 90 percent while the participant/subject is sleeping

Supplemental Measures of Gas Exchange Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12826 ECG arrhythmia ventricular morphology type

Type of morphology of any ventricular arrhythmia apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17993 Prenatal test text

Text notes of any comments regarding the selected prenatal testing type

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12800 Gene missense nonsense variant point mutation insertion deletion type

Type of the insertion deletion of the missense/nonsense variant or point mutation

Supplemental Mutation Analysis Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12452 Polysomnography end tidal carbon dioxide non-REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during non-rapid eye movement (REM) sleep

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12834 ECG bundle branch block incomplete status

Status of incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18001 Newborn complication child specification text

Text specifying other newborn complications

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12808 Gene sequenced with no variant mutation indicator

Indicator of whether there are additional genes sequenced with no variants or mutations detected

Supplemental Mutation Analysis Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12460 Polysomnography end tidal or transcutaneous carbon dioxide increase indicator

Indicator of whether there was an increase of more than 10 millimeters of mercury (mmHg) in end-tidal CO2 or transcutaneous CO2 at any time during sleep

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16017 Prenatal testing result

Results of the selected prenatal testing type

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17895 Genes sequenced with no mutations text

The free-text field about additional genes sequenced with no mutations detected

Supplemental Mutation Analysis Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17879 Polysomnography start time clock type

Type of clock used to record the time at which the sleep study began

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16028 Pregnancy prior history toxic exposure type

Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 126 - 150 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.