C18837
Respiratory manual cough assist use other text
The free-text field related to 'Respiratory manual cough assist use frequency' specifying other text. Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09578
Brief Pain Inventory (BPI) - least pain rating scale
Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00032
Race USA paternal category
Race(s) the participant/subject's father most closely identifies with
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18853
Pulmonary gas exchange assessment performed other text
The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed
Supplemental
Measures of Gas Exchange
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12796
Gene targeted variant or mutational analysis indicator
Whether variant or mutational analysis was targeted at a particular variant or mutation
Supplemental
Mutation Analysis
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19678
Associated Disease Condition Type
Type of disease or medical condition that is commonly associated with the primary disease under investigation
Supplemental
Medical History
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C10171
Trial number
The number representing the sequence for any repeated measure test or assessment when it is performed multiple times
Supplemental
Hand Held Dynamometry
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09586
Brief Pain Inventory (BPI) - pain normal work interference scale
Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form
Supplemental
Brief Pain Inventory (BPI) Short Form
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18751
Sex participant or subject genotype other text
The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C08508
36-item Short Form Health Survey (SF-36) - Health limited bending kneeling stooping score
Score of surveyee-reported limited bending, kneeling, or stooping due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C01700
Specimen accession number
Number with which the specimen taken for the tests being reported was accessioned to the record storage facility
Supplemental
Laboratory Tests and Tracking
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18677
Employment other text
The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment
Supplemental
Social Status
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12383
Respiratory tracheostomy tube size measurement
Measurement of the size of the tracheostomy tube
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C08516
36-item Short Form Health Survey (SF-36) - Difficulty work activities physical health indicator
Indicator for surveyee-reported difficulty performing work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19648
Imaging short T1 inversion recovery upper limbs anatomic site
Upper limbs anatomic site of short tau inversion recovery (STIR) sequence
Supplemental
Magnetic Resonance Imaging (MRI)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C01708
Lab test performed indicator
Indicator of whether the lab test has been performed on the participant/subject
Supplemental
Laboratory Tests and Tracking
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16147
Family history relative death cause text
Cause of death of the participant/subject's relative, if applicable
Supplemental
Family History
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12391
Respiratory assessment type
Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C08524
36-item Short Form Health Survey (SF-36) - Times nervous score
Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19734
Imaging T1 MRI lower limb score
The value of the sum of the T1 score for each lower-limb muscle, bilaterally
Supplemental
Magnetic Resonance Imaging (MRI)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12410
Pulmonary gas exchange fraction of inspired oxygen value
The fraction of inspired oxygen (FIO2) in the blood
Supplemental
Measures of Gas Exchange
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12432
Polysomnography apnea hypopnea index type total event count
Count of total sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12308
Pulmonary function test bronchodilator indicator
Whether the patient was taking bronchodilator during the time of testing
Supplemental
Pulmonary Function Testing
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12193
Dual X-ray absorptiometry appendicular lean soft tissue value
The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)
Supplemental
Dual X-Ray Absorptiometry (DXA)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C04507
ECG complete bundle branch block status
Status of complete bundle branch block on the electrocardiogram (EKG) being reported
Supplemental
Electrocardiogram (ECG)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy