C19629
Breastfeeding Absent text
Text describing the reason why the mother did not breastfeed
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16028
Pregnancy prior history toxic exposure type
Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12463
Polysomnography heart rate REM sleep value
Value, in beats per minute, of the selected heart rate (HR) measurement during rapid eye movement (REM) sleep
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19737
Goniometry shoulder abduct measurement
Measurement in degrees of the passive range of motion for shoulder abduction.
Supplemental
Goniometry
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12189
Dual X-ray absorptiometry whole body total lean value
Percentage of lean whole body mass. Dual X-ray absorptiometry (DEXA)
Supplemental
Dual X-Ray Absorptiometry (DXA)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16050
Phenotypic sex child type
Sex of the participant/subject's child based on physical examination
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19638
Polysomnography body position left side time
Time spent in left side body position for polysomnography.
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12431
Polysomnography apnea hypopnea index type
Type of Apnea-Hypopnea Index (AHI) event for which results are being reported
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12197
Dual X-ray absorptiometry left leg lean value
Left leg lean muscle mass for dual X-ray absorptiometry (DEXA)
Supplemental
Dual X-Ray Absorptiometry (DXA)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16060
Weight delivery mother unit of measure
Units for the measurement of the participant's/subject's weight at the time she gave birth
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C10970
Manual muscle testing date and time
Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed
Supplemental
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12439
Polysomnography blood oxygen saturation distribution percent value
The value of the blood oxygen saturation (SpO2) percentage for which sleep distribution results are being reported
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12371
Respiratory Intervention-support device brand name
The brand name of the respiratory support or assisted ventilation device used by the participant/subject, as part of the Respiratory Interventions form
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C17993
Prenatal test text
Text notes of any comments regarding the selected prenatal testing type
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C02496
Imaging scanner manufacturer name
Name of manufacturer of imaging scanner
Supplemental
Magnetic Resonance Imaging (MRI)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12447
Polysomnography blood oxygen saturation drop hour awake count
Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during time awake
Supplemental
Polysomnography
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18001
Newborn complication child specification text
Text specifying other newborn complications
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C16017
Prenatal testing result
Results of the selected prenatal testing type
Supplemental
Pregnancy
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C01705
Lab test name
Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions.
Supplemental
Laboratory Tests and Tracking
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12388
Respiratory ventilation mode bi-level positive pressure type
Type of bi-level positive pressure ventilation used by the support ventilation device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C09576
Brief Pain Inventory (BPI) - pain area indicator
On the diagram, shade in the areas where you feel pain. Put an X on the area that hurts the most, as part of the Brief Pain Inventory (BPI) form.
Supplemental
Brief Pain Inventory (Short Form)
True
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12424
Pulmonary gas exchange highest end tidal transcutaneous carbon dioxide value
The highest pressure of the end tidal CO2 (ETCO2) or transcutaneous CO2 (TCCO2) check while the participant/subject is sleeping
Supplemental
Measures of Gas Exchange
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18677
Employment other text
The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment
Supplemental
Social Status
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19648
Imaging short T1 inversion recovery upper limbs anatomic site
Upper limbs anatomic site of short tau inversion recovery (STIR) sequence
Supplemental
Magnetic Resonance Imaging (MRI)
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C01714
Pregnancy test not applicable reason
Reason that performance of a pregnancy test was not applicable to the participant/subject
Supplemental
Laboratory Tests and Tracking
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy