CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 326 - 350 of 451

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1938-C12805	C12805	Gene mRNA variant mutation name	Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C11081	C11081	Delivery caesarean timing status	Status of the caesarean delivery	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1830-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C19626	C19626	FSHD prenatal testing indicator	Indicator of whether prenatal testing for FSHD was performed	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1854-C12819	C12819	Disability benefit indicator	Indicator of whether participant/subject receives disability benefit payments	Supplemental	Social Status	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C17891	C17891	Gene additional variants unknown significance text	The free-text field about additional variants in other genes of unknown significance	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16024	C16024	Pregnancy prior history birth defect indicator	Indicator of whether a birth defect occurred in any of the participant/subject's previous pregnancies	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1830-C19647	C19647	Imaging short T1 inversion recovery lower limbs anatomic site	Lower limbs anatomic site of short tau inversion recovery (STIR) sequence	Supplemental	Magnetic Resonance Imaging (MRI)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1907-C01708	C01708	Lab test performed indicator	Indicator of whether the lab test has been performed on the participant/subject	Supplemental	Laboratory Tests and Tracking	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1858-C16147	C16147	Family history relative death cause text	Cause of death of the participant/subject's relative, if applicable	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1858-C14943	C14943	Family history relative deceased indicator	Indicator of whether family member is deceased	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1830-C19733	C19733	Imaging T1 MRI upper limb score	The value of the sum of the T1 score for each upper-limb muscle, bilaterally	Supplemental	Magnetic Resonance Imaging (MRI)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1907-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests and Tracking	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C19636	C19636	Polysomnography body position abdomen time	Time spent in abdomen body position for polysomnography	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16057	C16057	Activity pulse grimace appearance respiration five minute child score	Assessment of a newborn which is recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1838-C10854	C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Supplemental	Grip Strength	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C12788	C12788	Gene exon copy number tested indicator	Indicator of whether the copy number was directly tested for all exons	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C10501	C10501	Diagnosis initial age value	Age of the participant/subject when initially diagnosed with disease/disorder	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1822-C19735	C19735	Sleep Periodic Limb Movement index value	Value, in movements per hour of total sleep time, of the Periodic Limb Movement index of repetitive and stereotyped limb movements during sleep	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C10758	C10758	ECG WPW syndrome status	Status of whether ventricular preexcitation / Wolff-Parkinson-White syndrome (WPW) is present or absent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C16067	C16067	Newborn complication child indicator	Indicates whether there were other newborn complications experienced by the participant's/subject's child	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C12796	C12796	Gene targeted variant mutational analysis indicator	Indicator of whether variant or mutational analysis was targeted at a particular variant or mutation	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C19678	C19678	Associated Disease Condition Type	Type of disease or medical condition that is commonly associated with the primary disease under investigation	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1902-C10865	C10865	Dynamometry hand held muscle test performed date	Date (and time, if applicable and known) the hand held dynamometry was performed on the participant/subject	Supplemental	Hand Held Dynamometry	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy

Displaying 326 - 350 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.