CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 451
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16037 Pregnancy most recent live born infant indicator

Indicates whether the outcome of the participant/subject's most recent pregnancy was a live born infant?

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests and Tracking False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19669 Family history diagnosis age value

Age at which relative was diagnosed with the disease in question

 Supplemental Family History False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

 Supplemental Grip Strength False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19642 Polysomnography arousal index type REM event count

Count of non rapid eye movement (REM) events recorded for the type of arousal index being reported

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16051 Birth weight child value

Value of the weight of the participant/subject's child at birth

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12784 Variant mutational analysis performed family member indicator

Indicator of whether the mutational analysis was performed on a family member

 Supplemental Mutation Analysis False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

 Supplemental Medical History False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12197 Dual X-ray absorptiometry left leg lean value

Left leg lean muscle mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual X-Ray Absorptiometry (DXA) False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12445 Polysomnography blood oxygen saturation drop hour REM sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during rapid eye movement (REM) sleep time

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12421 Pulmonary gas exchange lowest oxygen saturation value

The lowest recorded oxygen saturation (SpO2) value

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19736 Respiration intervention invasive tracheostomy tube indicator

Indicator of invasive respiratory support including a tracheostomy tube

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17876 Pulmonary function test not done text

If the PFT was not performed on the participant/subject, specify other reason

 Supplemental Pulmonary Function Testing False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12371 Respiratory Intervention-support device brand name

The brand name of the respiratory support or assisted ventilation device used by the participant/subject, as part of the Respiratory Interventions form

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12453 Polysomnography end tidal carbon dioxide awake value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during wakefulness

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10872 Dynamometry hand held no result reason

Reason why there was no hand held dynamometry result for the muscle

 Supplemental Hand Held Dynamometry False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12381 Respiratory tracheostomy date

Date of the participant's/subject's tracheostomy

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12461 Polysomnography heart rate measurement grade

Grade of the heart rate (HR) measurements being reported

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Goniometry False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12389 Respiratory ventilation mode assist control type

Type of assist control ventilation used

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19629 Breastfeeding Absent text

Text describing the reason why the mother did not breastfeed

 Supplemental Pregnancy False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12429 Polysomnography sleep latency duration

Duration required by the participant/subject to transition from full wakefulness to sleep

 Supplemental Polysomnography False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12400 Respiratory oxygen administration method name

Name of method of administration of supplemental oxygen used

 Supplemental Measures of Gas Exchange False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12397 Respiratory support use frequency

Frequency of ventilation device use

 Supplemental Respiratory Interventions False Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 276 - 300 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.