CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C17967	ECG administer date time clock type	Type of clock system used to record time of electrocardiogram (ECG) administration	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C19577	Length infants measurement unit of measure	Unit of measure for the length numerical value for subject/participant	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C17890	Allele number one missense nonsense variant or point mutation subclass information type	Type of missense/nonsense variant or point mutation subclass information, first allele number one	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C12464	Polysomnography heart rate non-REM sleep value	Value, in beats per minute, of the selected heart rate (HR) measurement during non-rapid eye movement (REM) sleep	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C16023	Pregnancy prior history births pre-term count	Count of the total number of pregnancies the participant/subject carried for less than a full term (	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C19738	Goniometry shoulder forward flexion measurement	Measurement in degrees of the passive range of motion for shoulder forward flexion	Supplemental	Goniometry	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C12172	Dual X-ray absorptiometry beam technique type	The type of beam technique used for Dual X-ray absorptiometry (DEXA)	Supplemental	Dual X-Ray Absorptiometry (DXA)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C18875	Gene targeted variant or mutational analysis other text	The free-text field related to 'Gene targeted variant or mutational analysis type', specifying other text. Type of targeted variant or mutational analysis performed for the gene	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C19639	Polysomnography body position back time	Time spent in back body position for polysomnography	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C16044	Delivery cesarean section reason	Reason for the Cesarean section	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C12432	Polysomnography apnea hypopnea index type total event count	Count of total sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported	Supplemental	Polysomnography	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
C12308	Pulmonary function test bronchodilator indicator	Whether the patient was taking bronchodilator during the time of testing	Supplemental	Pulmonary Function Testing	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.