CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 451
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C01704 Pregnancy test specimen type

Type of specimen collected to perform the pregnancy test

Supplemental Laboratory Tests and Tracking Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event

Supplemental Family History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12387 Respiratory support ventilation mode type

Type of mode of ventilation for the support ventilation device used

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18777 ECG heart rhythm result other text

The free-text field related to 'ECG heart rhythm result type' specifying other text. Type of heart rhythm apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19652 Imaging bilateral short T1 inversion recovery value

Testing for STIR (short T1 Inversion recovery) on both the left and right side

Supplemental Magnetic Resonance Imaging (MRI) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19627 FSHD prenatal testing text

Text specifying results from FSHD prenatal testing that was performed on the participant/subject

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12395 Respiratory pressure support value

Value of the pressure support

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

Supplemental Grip Strength Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12175 Dual X-ray absorptiometry performed date

The date the Dual X-ray absorptiometry (DEXA) was performed

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19641 Polysomnography arousal index type total sleep event count

Count of total sleep events recorded for the type of arousal index being reported

Supplemental Polysomnography Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12403 Respiratory oxygen use schedule type

Type of schedule of supplemental oxygen use

Supplemental Respiratory Interventions Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12195 Dual X-ray absorptiometry left arm lean value

Left arm lean muscle mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 1 - 25 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.