C12403
Respiratory oxygen use schedule type
Type of schedule of supplemental oxygen use
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12404
Respiratory oxygen use schedule daily hours value
Value of the number of hours of supplemental oxygen use per day
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12402
Respiratory oxygen use frequency
Frequency of use of supplemental oxygen
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12401
Respiratory oxygen flow rate
The flow rate value of supplemental oxygen
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12401
Respiratory oxygen flow rate
The flow rate value of supplemental oxygen
Supplemental
Measures of Gas Exchange
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18852
Respiratory oxygen administration method other text
The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18852
Respiratory oxygen administration method other text
The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used
Supplemental
Measures of Gas Exchange
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12400
Respiratory oxygen administration method name
Name of method of administration of supplemental oxygen used
Supplemental
Measures of Gas Exchange
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12400
Respiratory oxygen administration method name
Name of method of administration of supplemental oxygen used
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12405
Respiratory other therapies description text
Text describing other relevant therapies for the participant's/subject's respiration system
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12380
Respiratory negative pressure initiation age value
Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, negative pressure device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12379
Respiratory negative pressure device initiation date
Date of initiation of non-invasive, negative pressure
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18837
Respiratory manual cough assist use other text
The free-text field related to 'Respiratory manual cough assist use frequency' specifying other text. Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12329
Respiratory manual cough assist use frequency
Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12331
Respiratory manual cough assist session time
The duration of manual cough assist use per session
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12330
Respiratory manual cough assist use daily frequency
Frequency of daily use of the manual cough assist method (e.g. Heimlich style maneuver)
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12371
Respiratory Intervention-support device brand name
The brand name of the respiratory support or assisted ventilation device used by the participant/subject, as part of the Respiratory Interventions form
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12392
Respiratory inspiratory positive airway pressure positive inspiratory pressure value
Value of the inspiratory positive airway pressure or positive inspiratory pressure
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12391
Respiratory assessment type
Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment
Supplemental
Measures of Gas Exchange
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12391
Respiratory assessment type
Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12384
Respiratory tracheostomy tube length measurement
Measurement of the length of the tracheostomy tube
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C19736
Respiration intervention invasive tracheostomy tube indicator
Indicator of invasive respiratory support including a tracheostomy tube
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00032
Race USA paternal category
Race(s) the participant/subject's father most closely identifies with
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00033
Race USA maternal category
Race(s) the participant/subject's mother most closely identifies with
Supplemental
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C00030
Race USA category
The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories
Core
Demographics
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy