CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 401 - 425 of 451
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12173 Dual X-ray absorptiometry scan anatomical site

Site on the body that was scanned for dual X-ray absorptiometry (DXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12196 Dual X-ray absorptiometry right leg lean value

Right leg lean muscle mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12194 Dual X-ray absorptiometry right arm lean value

Right arm lean muscle mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12175 Dual X-ray absorptiometry performed date

Date the dual X-ray absorptiometry (DXA) was performed

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17922 Dual X-ray absorptiometry past corticosteroid use indicator

Whether or not the participant has taken corticosteroids in the past during Dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12197 Dual X-ray absorptiometry left leg lean value

Left leg lean muscle mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12195 Dual X-ray absorptiometry left arm lean value

Left arm lean muscle mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C17921 Dual X-ray absorptiometry current corticosteroid use indicator

Whether or not the participant is currently taking any corticosteroids for Dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12172 Dual X-ray absorptiometry beam technique type

The type of beam technique used for Dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12193 Dual X-ray absorptiometry appendicular lean soft tissue value

The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

Supplemental Dual X-Ray Absorptiometry (DXA) Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19525 Disease/condition associated other specify text

Free text field that specifies the associated disease or condition

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C19519 Disease condition associated name

Name of associated disease/condition

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

Supplemental Social Status Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18241 Diagnosis age value unit of measure

Unit of measure for age value of the participant when initially diagnosed with disease/disorder

Supplemental Medical History Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C11078 Delivery mode type

Type of delivery mode of the neonate

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16042 Delivery mode induced reason

Type of induced delivery that occurred during the live infant birth

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C18829 Delivery mode induced other text

The free-text field related to 'Delivery mode type' for induced delivery mode. Type of delivery mode of the neonate

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C11080 Delivery modality type

Type of modality of the participant/subject's intrauterine orientation at delivery

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C16044 Delivery cesarean section reason

Reason for the Cesarean section

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C11081 Delivery caesarean timing status

Status of the caesarean delivery

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Pregnancy Facioscapulohumeral Muscular Dystrophy Facioscapulohumeral Muscular Dystrophy
Displaying 401 - 425 of 451

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.