C12389
Respiratory ventilation mode assist control type
Type of assist control ventilation used
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12386
Respiratory tracheostomy tube timing type
Type of inflation/deflation timing settings for cuffed tubes
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18850
Respiratory tracheostomy tube timing other text
The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12383
Respiratory tracheostomy tube size measurement
Measurement of the size of the tracheostomy tube
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12385
Respiratory tracheostomy tube cuffed indicator
Indicator of whether or not the tracheostomy tube that the participant/subject uses has cuffs
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12382
Respiratory tracheostomy tube brand style name
Name of the brand/style of the invasive tracheostomy device used by the participant/subject
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12381
Respiratory tracheostomy date
Date of the participant's/subject's tracheostomy
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12394
Respiratory tidal volume measurement
Measurement of the tidal volume of the support ventilation device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12387
Respiratory support ventilation mode type
Type of mode of ventilation for the support ventilation device used
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18851
Respiratory support ventilation mode other text
The free-text field related to 'Respiratory support ventilation mode type' specifying other text. Type of mode of ventilation for the support ventilation device used
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C17881
Respiratory support ventilation mode negative pressure text
Text specifying the negative pressure support ventilation used by the support ventilation device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12397
Respiratory support use frequency
Frequency of ventilation device use
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12399
Respiratory support schedule use time day type
The type as it relates to the time(s) of day the ventilation device is used by the participant/subject
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12398
Respiratory support schedule daily hour value
Value of the number of hours of daily ventilation device use
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12374
Respiratory support positive pressure device delivery method type
Type of non-invasive, positive pressure delivery method supported by the device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18848
Respiratory support positive pressure device delivery method other text
The free-text field related to 'Respiratory support positive pressure device delivery method type' specifying other text. Type of non-invasive, positive pressure delivery method supported by the device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12378
Respiratory support negative pressure device delivery method type
Type of non-invasive, negative pressure delivery method supported by the device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C18849
Respiratory support negative pressure device delivery method other text
The free-text field related to 'Respiratory support negative pressure device delivery method type' specifying other text. Type of non-invasive, negative pressure delivery method supported by the device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12372
Respiratory support device model name
Name of the model of the respiratory support or assisted ventilation device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12396
Respiratory supplemental oxygen value
Value of the flow rate of supplemental oxygen
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C01535
Respiratory rate
Rate of the participant/subject's breathing (inhalation and exhalation)
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12395
Respiratory pressure support value
Value of the pressure support
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12376
Respiratory positive pressure initiation age value
Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, positive pressure device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12375
Respiratory positive pressure device initiation date
Date of initiation of the non-invasive, positive pressure device
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
C12393
Respiratory positive end-expiratory pressure expiratory positive airway pressure value
Value of the positive end-expiratory pressure (PEEP)/expiratory positive airway pressure (EPAP)
Supplemental
Respiratory Interventions
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy