CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1858-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1858-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1854-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C18254	C18254	Medical history assessment indicator	Whether the participant/subject has a history of any medical problems/conditions	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C18243	C18243	Symptom first appear age type	Type of age of the participant/subject at first symptom appearance	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C18242	C18242	Symptoms first appeared age value	Value of the age at which the participant/subject first noted a neuromuscular symptom	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1867-C18241	C18241	Diagnosis age value unit of measure	Unit of measure for age value of the participant when initially diagnosed with disease/disorder	Supplemental	Medical History	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C18002	C18002	Placenta umbilical cord abnormality specification text	Text describing placenta or umbilical cord abnormalities	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C18001	C18001	Newborn complication child specification text	Text specifying other newborn complications	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C18000	C18000	Congenital anomalies child specification text	Text specifying any congenital anomalies of the participant/subject	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C17999	C17999	Tocolytic agents required during preterm specification text	Text specifying the tocolytic agents the participant/subject required during preterm labor	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C17998	C17998	Pregnancy labor delivery complication specification text	Text about the participant/subject's experience with any complications during labor/delivery	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C17997	C17997	Pregnancy fetus not normal description text	Description of the abnormal pregnancy fetus	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C17996	C17996	Pregnancy prior history birth defect text	Text of any comments about any birth defects that occurred during the participant/subject's previous pregnancies	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C17995	C17995	Pregnancy infection illness text	Text specifying any infections or illnesses the participant/subject experienced during this pregnancy	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C17994	C17994	Pregnancy complication text	Text specifying any complications the participant/subject experienced during this pregnancy	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1875-C17993	C17993	Prenatal test text	Text notes of any comments regarding the selected prenatal testing type	Supplemental	Pregnancy	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C17967	C17967	ECG administer date time clock type	Type of clock system used to record time of electrocardiogram (ECG/EKG) administration	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1939-C17966	C17966	ECG result text	Text description of any electrocardiogram (ECG) result selected other than Normal	Supplemental	Electrocardiogram (ECG)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1891-C17922	C17922	Dual X-ray absorptiometry past corticosteroid use indicator	Whether or not the participant has taken corticosteroids in the past during Dual X-ray absorptiometry (DEXA)	Supplemental	Dual X-Ray Absorptiometry (DXA)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1891-C17921	C17921	Dual X-ray absorptiometry current corticosteroid use indicator	Whether or not the participant is currently taking any corticosteroids for Dual X-ray absorptiometry (DEXA)	Supplemental	Dual X-Ray Absorptiometry (DXA)	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C17896	C17896	Variant mutational analysis not performed reason	Reason for why the mutational analysis was not performed	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C17895	C17895	Genes sequenced with no mutations text	The free-text field about additional genes sequenced with no mutations detected	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C17894	C17894	Gene missense nonsense variant point mutation location intron text	The free-text field about missense/nonsense variant or point mutation at the intron	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy
F1938-C17893	C17893	Gene missense nonsense variant point mutation location other text	The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron	Supplemental	Mutation Analysis	False	Facioscapulohumeral Muscular Dystrophy	Facioscapulohumeral Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.