CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 883

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1120-C14514	C14514	Device implanted modification reason	The reason for modification of parameters or electrode configuration of original implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14563	C14563	EEG interictal abnormality localized focal area of origin type	Electrode points for abnormal electrical field observed using electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C14467	C14467	Sensory system abnormality symmetry type	Symmetry of abnormality for sensory system results	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1105-C14430	C14430	Tanner stage	Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1806-C19510	C19510	Post traumatic brain injury diagnosis epilepsy seizure diagnosis indicator	Indicator for the diagnosis of the participant with epilepsy, a seizure disorder, or a single seizure after the date of the traumatic brain injury diagnosis	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1122-C18574	C18574	Device implanted new lead component registration number	The registration number of the new lead component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1115-C14611	C14611	EEG ictal face sign type	The face sign type from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C18955	C18955	Device implanted other text	The free-text field related to 'Device implanted type' specifying other text. The type of device used	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14571	C14571	EEG focal and generalized slowing focus text	The cerebral focus for focal and generalized slowing based on electroencephalography (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C18509	C18509	Reflex left arm assessment status	The status of the relfex assessment for the left arm	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14431	C14431	Mental status examined type	Type of mental status assessment performed	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1109-C13967	C13967	Imaging domain tested type	Cognitive Area or brain function tested during scan	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F3064-C13979	C13979	Imaging abnormality feature type	The present abnormality feature(s)	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1119-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1101-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Epilepsy	Epilepsy
F1114-C13998	C13998	PET localization cortical anatomic site	The cortical anatomical site of tracer binding/uptake based on positron emission tomography (PET)	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1953-C21484	C21484	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest number series text	Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1116-C18536	C18536	Medication non-anti-epileptic drug prior or concomitant dose frequency	The frequency of use of a prior/concomitant non-anti-epileptic drug (NAED)	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1109-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F3064-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1102-C58584	C58584	Seizure focal aware present status	The status indicating the degree to which a focal aware seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1953-C21492	C21492	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest number series text	Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1117-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1110-C13962	C13962	Seizure last occurrence date and time	The date and time the last seizure occurred	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1115-C18969	C18969	EEG interictal periodic discharge other text	The free-text field related to 'EEG interictal periodic discharge type' specifying other text. Distinctive electroencephalogram (EEG) waves or complexes, distinguished from background EEG activity, that suggests a seizure tendency	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.