CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1104-C18502	C18502	Epilepsy syndrome unspecified type	Epilepsy syndromes with unspecified relationships that do not fit into other specified categories	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C18950	C18950	Epilepsy syndrome neonatal onset other text	The free-text field related to 'Epilepsy syndrome neonatal onset type' specifying other text. Common epilepsy syndromes with onset in the neonatal period (	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C18951	C18951	Epilepsy syndrome infant onset other text	The free-text field related to 'Epilepsy syndrome infant onset type' specifying other text. Common epilepsy syndromes for infants, children less than 2 years of age	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C18952	C18952	Epilepsy syndrome childhood onset other text	The free-text field related to 'Epilepsy syndrome childhood onset type' specifying other text. Common epilepsy syndromes for children, 2-12 years of age	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C18953	C18953	Epilepsy syndrome adolescence adult onset other text	The free-text field related to 'Epilepsy syndrome adolescence adult onset type' specifying other text. Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C19072	C19072	Epilepsy syndrome unspecified other text	The free-text field related to 'Epilepsy syndrome unspecified type' specifying other text. Epilepsy syndromes with unspecified relationships that do not fit into other specified categories	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1105-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C14429	C14429	Global change since prior examination result	Global assessment of the difference between the prior and follow-up examinations	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C14430	C14430	Tanner stage	Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1105-C18931	C18931	Global change since prior examination other text	The free-text field related to 'Global change since prior examination result' specifying other text. Global assessment of the difference between the prior and follow-up examinations	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1106-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C11026	C11026	Neuromuscular Exam Muscle weakness indicator	Indicator whether there is muscle weakness in the muscle or muscle group examined	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C11061	C11061	Gait assessment result	Result of the gait assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14429	C14429	Global change since prior examination result	Global assessment of the difference between the prior and follow-up examinations	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14431	C14431	Mental status examined type	Type of mental status assessment performed	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14432	C14432	Mental status exam abnormality indicator	Whether the mental assessment showed abnormal results	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14433	C14433	Cranial nerves global assessment result	The condition of Cranial Nerves	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14434	C14434	Cranial nerve abnormal identifier type	The identified cranial nerve that assessed as abnormal	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.