CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 883
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58601 Seizure epilepsy generalized non-motor subtype type

The element related to type of non-motor generalized seizures the participant/subject is experiencing

Supplemental Classification of Seizures Epilepsy Epilepsy
C58602 Seizure epilepsy unknown onset subtype status

The element related to the degree to which a seizure of unknown onset is present

Supplemental Classification of Seizures Epilepsy Epilepsy
C58603 Seizure epilepsy unknown onset subtype type

The element related to type of unknown onset seizures the participant/subject is experiencing

Supplemental Classification of Seizures Epilepsy Epilepsy
C58604 Seizure unclassified classification status

The element related to the degree to which unclassified seizures are present

Supplemental-Highly Recommended Classification of Seizures Epilepsy Epilepsy
C58607 Seizure epilepsy generalized subtype status

The element related to the degree to which a generalized seizure is present

Supplemental Classification of Seizures Epilepsy Epilepsy
C14425 Epilepsy etiology specific attribution confidence type

The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C14426 Epilepsy etiology primary type

Primary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C14427 Epilepsy etiology secondary type

Secondary etiologic cause for epilepsy when multiple etiologies are present (i.e., more than one etiology, as described by the International League Against Epilepsy, is coded as definite or possible)

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C58580 Specific epilepsy etiology classification type

The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies

Core Classification of Etiology Epilepsy Epilepsy
C58582 Genetic presumed genetic epilepsy etiology type

The categorization for genetic or presumed genetic etiology of epilepsy

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C58587 Structural epilepsy etiology type

The categorization for structural etiology of epilepsy

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C58605 Metabolic toxic epilepsy etiology type

The categorization for metabolic toxic etiology of epilepsy

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C58606 Other epilepsy etiology type

The categorization for other etiology of epilepsy

Supplemental-Highly Recommended Classification of Etiology Epilepsy Epilepsy
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14134 Data valid through date and time

Date (and time, if applicable and known) the data collected are valid through

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14470 Epilepsy syndrome likelihood present type

Certainty of whether the participant/subject has or had the epilepsy syndrome for the particular age period

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14471 Epilepsy syndrome neonatal onset type

Common epilepsy syndromes with onset in the neonatal period (

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14472 Epilepsy syndrome age of onset type

Age period during which the epilepsy syndrome first appeared

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14473 Epilepsy syndrome infant onset type

Common epilepsy syndromes for infants, children less than 2 years of age

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14475 Epilepsy syndrome childhood onset type

Common epilepsy syndromes for children, 2-12 years of age

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14477 Epilepsy syndrome adolescence adult onset type

Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14479 Epilepsy syndrome less specific age relationship type

Common epilepsy syndromes that have a less specific age or no association with a specific age on onset

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14481 Epilepsy syndrome distinctive constellation type

Syndromes with distinctive constellations, diagnostically meaningful forms of epilepsy and may have implications for clinical treatment, particularly surgery

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C14483 Epilepsy syndrome other localization type

Epilepsy syndromes related to other localizations

Supplemental Syndromes by Age of Onset Epilepsy Epilepsy
C14485 Epilepsy syndromes distinct confidence level type

Confidence level that the two or more epilepsy syndromes selected as present are distinct syndromes

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
Displaying 51 - 75 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.