CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1103-C58587	C58587	Structural epilepsy etiology type	The categorization for structural etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1123-C59562	C59562	Therapeutic brain stimulation cortical orbitofrontal laterality procedure type	Laterality type relative to the orbitofrontal area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17638	C17638	Surgery post-operative psychiatric complication text	The text describing details for the psychiatric event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F2685-C13208	C13208	Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale	Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1123-C59522	C59522	Surgery multi-lobar percentage estimate parietal lobe resection remove range	Range of estimated percentage of parietal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14340	C14340	Surgery multiple subpial transection largest lateral dimension estimated value	The longest estimated length (in cm) of tissue transected in the lateral (LAT) dimension during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C14473	C14473	Epilepsy syndrome infant onset type	Common epilepsy syndromes for infants, children less than 2 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C59570	C59570	Therapeutic brain stimulation subcortical cerebellum procedure laterality type	Laterality type relative to the cerebellum area in the brain upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18587	C18587	Surgery post-operative memory deficit complication text	The text describing details for the memory deficit event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59530	C59530	Surgery multi-lobar percent estimate insula resection remove range	Range of estimated percentage of insula tissue removed from the insula during surgery to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14353	C14353	Therapeutic brain stimulation placement method type	The surgical method or technique used during placement of electrodes for therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59490	C59490	Surgery lesionectomy suspect lesion central cortex laterality type	Laterality type relative to a suspected lesion in the central cortex area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59538	C59538	Surgery multiple subpial transection orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14361	C14361	Therapeutic brain stimulation intermittent pulse on duration	For therapeutic brain stimulation using intermittent pulses, the duration of a cycle in seconds when the stimulus pulse was actively producing an electrical current	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59498	C59498	Surgery neocortical resection lateral temporal laterality type	Laterality type relative to the lateral temporal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14303	C14303	Surgery anterior temporal lobectomy amygdala resection estimated percentage value	The estimated percentage of tissue resected from the total volume of tissue in the amygdala during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59546	C59546	Surgery stereotactic lesion medial temporal laterality type	Laterality type relative to the medial temporal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14369	C14369	Pathology temporal lobectomy hippocampus finding type	The type of damage or cellular abnormality found in tissue from the hippocampus removed during a temporal lobectomy procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59506	C59506	Surgery neocortical resection size estimate type	Type of tissue size estimation relative to a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14311	C14311	Surgery amygdalohippocampectomy parahippocampal estimated length value	The estimated length of tissue (in cm) resected from the parahippocampal gyrus of the brain during an amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59475	C59475	Surgery anterior temporal lobectomy plus extended resection medial frontal laterality type	Laterality type relative to resection extended into the medial frontal area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59390	C59390	Surgery diagnostic electrode subdural other laterality type	Laterality type relative to diagnostic subdural electrodes on a surgical placement in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C08039	C08039	Electrode brain count	Count of electrodes introduced in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59483	C59483	Surgery lesionectomy suspect lesion medial temporal laterality type	Laterality type relative to suspected lesion in the medial temporal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1144-C14139	C14139	Seizure diary completer type	The type of person recording the diary data	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.