CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C59579	C59579	Surgery post-operative cranial nerve deficit complication text	Text describing details for the cranial nerve deficit event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59369	C59369	Suspected pathology type other text	The free-text field related to 'Suspected pathology type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59462	C59462	Surgery diagnostic electrode other type temporal laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in the temporal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59377	C59377	Surgery diagnostic electrode depth occipital laterality type	Laterality type relative to diagnostic depth electrodes surgical placement in the occipital area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59470	C59470	Surgery anterior temporal lobectomy plus extended resection lateral temporal laterality type	Laterality type relative to resection extended into the lateral temporal area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59385	C59385	Surgery diagnostic electrode subdural temporal laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the temporal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59478	C59478	Surgery amygdalohippocampectomy laterality type	Laterality type relative to amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59394	C59394	Surgery diagnostic electrode epidural hippocampus laterality type	Laterality type relative to diagnostic epidural electrodes surgical placement in the hippocampus area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59486	C59486	Surgery lesionectomy suspect lesion hypothalamus laterality type	Laterality type relative to a suspected lesion in the hypothalamus area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18922	C18922	Therapeutic brain stimulation placement method other text	The free-text field related to 'Therapeutic brain stimulation placement method type' specifying other text. The surgical method or technique used during placement of electrodes for therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59533	C59533	Surgery corpus callosotomy disconnection tissue type	Type of tissue disconnection relative to corpus callosotomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14357	C14357	Therapeutic brain stimulation pulse current value	The rate of flow of electrical charges through an electrode during stimulation pulses, measured in milliamperes, during a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59493	C59493	Surgery lesionectomy suspect lesion other anatomic site laterality type	Laterality type relative to a suspected lesion in the another area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C14479	C14479	Epilepsy syndrome less specific age relationship type	Common epilepsy syndromes that have a less specific age or no association with a specific age on onset	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C14299	C14299	Surgery anterior temporal lobectomy superior temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the superior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1102-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C59541	C59541	Surgery multiple subpial transection central cortex laterality type	Laterality type relative to the central cortex area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14365	C14365	Surgical language laterality type	The apparent responsibility (or dominance) for production of language that is related to the side of the body and brain being treated during a surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59501	C59501	Surgery neocortical resection orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14307	C14307	Surgery anterior temporal lobectomy plus largest lateral extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59549	C59549	Surgery stereotactic lesion parietal laterality type	Laterality type relative to the parietal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14373	C14373	Pathology lesionectomy infectious or inflammatory finding type	The type of cellular abnormalities arising in conjunction with infection or inflammation that are found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59509	C59509	Surgery neocortical resection largest depth estimated value	The largest estimated depth (in cm) of resection that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14316	C14316	Surgery lesionectomy suspect lesion anatomic site	Anatomic location(s) of the suspected anatomical abnormality in the brain to be evaluated during a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59557	C59557	Therapeutic brain stimulation procedure cortical anatomic site	Anatomic location(s) upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.