CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1116-C18538	C18538	Medication discontinuation idiosyncratic side effect text	The free-text field to specify the idiosyncratic side effect that resulted in a discontinuation of medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1104-C18502	C18502	Epilepsy syndrome unspecified type	Epilepsy syndromes with unspecified relationships that do not fit into other specified categories	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1109-C18894	C18894	Imaging functional magnetic resonance imaging analysis other text	The free-text field related to 'Imaging functional magnetic resonance imaging analysis type' specifying other text. Types of functional magnetic resonance imaging (fMRI) analytic methods	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1115-C18963	C18963	EEG prolonged duration other text	The free-text field related to 'EEG prolonged duration type' specifying other text. The length of time for the prolonged electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1102-C58585	C58585	Seizure focal aware motor present status	The status indicating the degree to which a motor/observable focal aware seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F3064-C59592	C59592	Imaging abnormality description type	Type of description of imaging abnormalities	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1953-C21494	C21494	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial number	Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1117-C14142	C14142	Medication prior or concomitant formulation text	Text describing the formulation of the prior/concomitant medication, such as extended release, liquid, sprinkle, etc	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1110-C13989	C13989	Imaging ictal single-photon emission computed tomography localization rating type	localization rating indicator of imaging using ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1115-C18971	C18971	EEG focal and generalized slowing location other text	The free-text field related to 'EEG focal and generalized slowing location type' specifying other text. Location of focal and generalized slowing based on electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1102-C58594	C58594	Seizure focal unknown awareness no observable motor present status	The status indicating the degree to which a focal, unknown awareness seizure without observable motor is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1107-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F0803-C09593	C09593	Brief Psychiatric Rating Scale (BPRS) - conceptual disorganization score	The score of the participant's/subject's conceptual disorganization, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F3064-C59600	C59600	Imaging specific abnormality laterality type	Laterality type relative to the anatomic site of the identified specific abnormality	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1953-C21502	C21502	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest trial number	Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1117-C18543	C18543	Responses all positive indicator	The yes/no indicator where all the answers on the form were "Yes"	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1111-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1115-C18979	C18979	EEG ictal responsiveness testing other text	The free-text field related to 'EEG ictal responsiveness testing type' specifying other text. Method applied to test subject's responsiveness or reaction to stimuli from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1102-C58602	C58602	Seizure epilepsy unknown onset subtype status	The element related to the degree to which a seizure of unknown onset is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1107-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F0803-C09601	C09601	Brief Psychiatric Rating Scale (BPRS) - halluncinatory behavior score	The score of the participant's/subject's hallucinatory, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1118-C14417	C14417	Medication plasma concentration last dose date and time	Date (and time if applicable and known) when the last dose was administered before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1111-C14047	C14047	Magnetoencephalography/ electroencephalography source analysis beamformer type	A signal processing technique used for determining location of electric activity that can be accomplished via different approaches	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1116-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1109-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.