CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C59380	C59380	Surgery diagnostic electrode depth other laterality type	Laterality type relative to diagnostic depth electrodes surgical placement in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1103-C14425	C14425	Epilepsy etiology specific attribution confidence type	The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1123-C59473	C59473	Surgery anterior temporal lobectomy plus extended resection orbitofrontal laterality type	Laterality type relative to resection extended into the orbitofrontal area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59388	C59388	Surgery diagnostic electrode subdural insula laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the insula area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59560	C59560	Therapeutic brain stimulation cortical occipital procedure laterality type	Laterality type relative to the occipital area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14384	C14384	Pathology lesionectomy trauma finding text	The description of the brain tissue abnormality caused by trauma that is found in conjunction with other cellular abnormalities during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F2685-C13206	C13206	Generalized Anxiety Disorder (GAD-7) - not stop worry scale	Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1123-C59520	C59520	Surgery multi-lobar parietal lobe resection laterality type	Laterality type relative to parietal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14339	C14339	Surgery multiple subpial transection largest anterior-posterior dimension estimated value	The longest estimated length (in cm) of tissue transected in the anterior-posterior (AP) dimension during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59568	C59568	Therapeutic brain stimulation subcortical anterior thalamus procedure laterality type	Laterality type relative to the anterior thalamus area in the brain upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18586	C18586	Surgery post-operative gastrointestinal complication text	The text describing details for the other gastrointestinal event or complication(s) affecting general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59528	C59528	Surgery multi-lobar insula resection laterality type	Laterality type relative to insula tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14352	C14352	Therapeutic brain stimulation depth coordinates value	The value measuring depth of placement of an electrode during a surgical intervention that uses of a three-dimensional coordinate system to locate small targets inside The body and to perform some action on them	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59536	C59536	Surgery multiple subpial transection occipital laterality type	Laterality type relative to the occipital area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14360	C14360	Therapeutic brain stimulation pulse stimulus type	The type of stimulus pulses applied during therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59496	C59496	Surgery lesionectomy plus resection size estimate type	Type of tissue size estimation relative to tissue resectioned beyond in a lesionectomy plus surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14302	C14302	Surgery anterior temporal lobectomy parahippocampal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the parahippocampal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59544	C59544	Surgery stereotactic lesion method type	Type of method used for stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14368	C14368	Surgery stereotaxis type	The type of medical device used during a surgical procedure to permits precise measurement in locating small targets inside the body using a three-dimensional coordinate system	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59504	C59504	Surgery neocortical resection central cortex laterality type	Laterality type relative to the central cortex area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14310	C14310	Surgery anterior temporal lobectomy plus extended resection anatomic site	The anatomic location(s) where tissue resection extended into adjacent brain structures beyond the boundaries defined for an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59552	C59552	Surgery stereotactic lesion medial frontal laterality type	Laterality type relative to the medial frontal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14376	C14376	Surgery post-operative seizure indicator	Indicator for whether the participant/subject experienced one or more seizures that occurred within 30 days after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59512	C59512	Surgery multi-lobar temporal lobe resection laterality type	Laterality type relative to temporal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14319	C14319	Surgery lesionectomy plus largest anterior-posterior extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent anterior-posterior (AP) brain structures that occurred during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.