CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C59499	Surgery neocortical resection occipital laterality type	Laterality type relative to the occipital area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14305	Surgery anterior temporal lobectomy plus adjacent resection indicator	The indicator for whether the resection extended to adjacent brain structures beyond the boundaries defined for an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59459	Surgery diagnostic electrode other location anatomic site other text	The free-text field related to 'Surgery diagnostic electrode other location anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
C59384	Surgery diagnostic electrode subdural frontal laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the frontal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59554	Surgery stereotactic lesion insula laterality type	Laterality type relative to the insula area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14378	Surgery post-operative neurologic complication type	The type of event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59393	Surgery diagnostic electrode epidural anatomic site other text	The free-text field related to 'Surgery diagnostic electrode epidural anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59562	Therapeutic brain stimulation cortical orbitofrontal laterality procedure type	Laterality type relative to the orbitofrontal area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C17639	Surgery post-operative readmission 30 days after surgery reason	The text explaining the circumstances for why the participant/subject is readmitted to the hospital within the 30 days after a surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C58587	Structural epilepsy etiology type	The categorization for structural etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
C59420	Surgery diagnostic electrode epidural other laterality type	Laterality type relative to diagnostic epidural electrodes surgical placement in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59570	Therapeutic brain stimulation subcortical cerebellum procedure laterality type	Laterality type relative to the cerebellum area in the brain upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C18917	Surgery lesionectomy resection extent other text	The free-text field related to 'Surgery lesionectomy resection extent type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14473	Epilepsy syndrome infant onset type	Common epilepsy syndromes for infants, children less than 2 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C59438	Surgery diagnostic electrode foramen ovale insula laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the insula area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59578	Surgery post-operative neurologic visual field deficit type	Type of visual field deficit event or complication(s) affecting the nervous system or brain functionality that occur after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59368	Suspected pathology type	The type of suspected diagnosis given to the participant/subject	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59538	Surgery multiple subpial transection orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59376	Surgery diagnostic electrode depth parietal laterality type	Laterality type relative to diagnostic depth electrodes surgical placement in the parietal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59546	Surgery stereotactic lesion medial temporal laterality type	Laterality type relative to the medial temporal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14370	Pathology lesionectomy vascular finding type	The type of damage or cellular abnormality found in vascular tissues during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59508	Surgery neocortical resection largest lateral extent estimated value	The longest estimated length (in cm) of resection, in the lateral (LAT) dimension, that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C14314	Surgery amygdalohippocampectomy approach anatomic site	The relative pathway taken by the surgeon to gain access to the hippocampus described in terms of other surrounding brain structures	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C59468	Surgery anterior temporal lobectomy laterality type	Laterality type relative to anterior temporal lobectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.