CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1126-C02306	C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1106-C11026	C11026	Neuromuscular Exam Muscle weakness indicator	Indicator whether there is muscle weakness in the muscle or muscle group examined	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1116-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1120-C14503	C14503	Device implanted removal date	The date the device no longer provided therapy according to the parameters specified	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1441-C18965	C18965	EEG behavioral state recorded other text	The free-text field related to 'EEG behavioral state recorded type' specifying other text. The recorded state(s) of the subject during the electroencephalogram (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C18514	C18514	Sensory system abnormality participant description text	The free-text field to capture the participant's description of the sensory abnormality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1119-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1122-C18556	C18556	Device implanted intolerable stimulation adverse effect modification description text	The reason for modification of original parameters or original electrode configuration of implanted device due to intolerable stimulation related Adverse Event (AE), specification	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1143-C10478	C10478	Learning disability diagnosis type	Type of learning disability with which the participant/subject was diagnosed	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1106-C14436	C14436	Nystagmus type	Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1116-C18537	C18537	Medication discontinuation dose related side effect text	The free-text field to specify the dose-related side effect that resulted in a discontinuation of medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1120-C14511	C14511	Device implanted positive electrode location text	The location of positive electrodes from the implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C18962	C18962	EEG data original purpose other text	The free-text field related to 'EEG data original purpose type' specifying other text. The reason(s) for gathering data via electroencephalogram (EEG) method	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1806-C19507	C19507	Family member seizures or epilepsy indicator	Indicator for someone having told you that you/your family member have seizures or epilepsy	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1106-C18935	C18935	Muscle bulk assessment abnormality other text	The free-text field related to 'Muscle bulk assessment abnormality type' specifying other text. The muscle bulk abnormality type	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1122-C18571	C18571	Device implanted nerve stimulator new component model number	The model number of the new implanted nerve stimulator (INS) component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1143-C14121	C14121	Language laterality indicator	Presence or absence of established localization for language skills as indicated by fMRI or Wada	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1106-C14444	C14444	Muscle tone assessment abnormality indicator	Whether the muscle tone assessment found any abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1117-C08223	C08223	Medication prior or concomitant discontinuation reason	Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1120-C18558	C18558	Device implanted other adverse effect modification description text	The reason for modification of original parameters or original electrode configuration of implanted device due to other Adverse Event (AE), specification	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C18970	C18970	EEG interictal circumstance other text	The free-text field related to 'EEG interictal circumstance type' specifying other text. State subject is in during interictal electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C18943	C18943	Cerebellar or coordination assessment abnormality explain other text	The free-text field related to 'Cerebellar or coordination assessment abnormality present type' specifying other text for explaining the type of abnormality found by the cerebellar/coordination assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1122-C18580	C18580	Device implanted right lead revision component type	The modification of the right lead component including explant, replacement, and repositioning	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1144-C18904	C18904	Seizure diary completer other text	The free-text field related to 'Seizure diary completer type' specifying other text. The type of person recording the diary data	Supplemental	Seizure Diary	False	Epilepsy	Epilepsy
F1106-C14453	C14453	Tremor type	The type of tremor detected during the exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.