CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1104-C14477	C14477	Epilepsy syndrome adolescence adult onset type	Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1102-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C59540	C59540	Surgery multiple subpial transection medial frontal laterality type	Laterality type relative to the medial frontal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14364	C14364	Pathology temporal lobectomy temporal lobe finding text	The decription of damage or cellular abnormality found in tissue from the temporal lobe of the brain removed during a temporal lobectomy procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59500	C59500	Surgery neocortical resection parietal laterality type	Laterality type relative to the parietal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14306	C14306	Surgery anterior temporal lobectomy plus largest anterior-posterior extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent anterior-posterior (AP) brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59548	C59548	Surgery stereotactic lesion occipital laterality type	Laterality type relative to the occipital area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14372	C14372	Pathology lesionectomy cortical dysplasia indicator	Indicator for whether cortical dysplasia was found in conjunction with other cellular abnormalities identified during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59508	C59508	Surgery neocortical resection largest lateral extent estimated value	The longest estimated length (in cm) of resection, in the lateral (LAT) dimension, that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14314	C14314	Surgery amygdalohippocampectomy approach anatomic site	The relative pathway taken by the surgeon to gain access to the hippocampus described in terms of other surrounding brain structures	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59556	C59556	Therapeutic brain stimulation procedure type	Type of method used for therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14380	C14380	Surgery post-operative readmission 30 days after surgery indicator	Indicator for whether the participant/subject is readmitted to the hospital within the 30 days after a surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59516	C59516	Surgery multi-lobar occipital lobe resection laterality type	Laterality type relative to occipital lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14329	C14329	Surgery multi-lobar resection lesion indicator	Indicator for whether an anatomic abnormality was identified during surgery to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59564	C59564	Therapeutic brain stimulation cortical medial frontal procedure laterality type	Laterality type relative to the medial frontal area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17641	C17641	Surgery post-operative return to operating room reason	The text explaining the circumstances for why the participant/subject required another surgery during the post-operative period	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F2685-C13210	C13210	Generalized Anxiety Disorder (GAD-7) - easily annoyed scale	Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1123-C59524	C59524	Surgery multi-lobar frontal lobe resection laterality type	Laterality type relative to frontal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1122-C18582	C18582	Device revision replacement log line number	The referenced line number of the entry on the device revision replacment log	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1441-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C14617	C14617	EEG ictal trunk or limb sign sequence identifier	Numerical value representing subject's responsiveness through specific types of movement of the trunk or limbs or behavior involving the trunk or limbs	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1121-C14520	C14520	Device stimulation target anatomic site	The target of stimulation the device acts upon (where the device lead is located)	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1106-C18935	C18935	Muscle bulk assessment abnormality other text	The free-text field related to 'Muscle bulk assessment abnormality type' specifying other text. The muscle bulk abnormality type	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1115-C14577	C14577	EEG ictal evaluation seizure identifier	The seizure number used to identify the seizure in the order they occurred during electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C14444	C14444	Muscle tone assessment abnormality indicator	Whether the muscle tone assessment found any abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.