CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 883

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C18972	EEG ictal onset location other text	The free-text field related to 'EEG ictal onset location type' specifying other text. The location on electroencephalogram (EEG) for ictal onset	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C01521	Heart rate	The participant/subject's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
C17432	EEG focal slowing indicator	The yes/no indicator for electroencephalography (EEG) focal slowing	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C18544	Medication anti-epileptic drug formulation indicator	The yes/no indicator for formulation of the prior/concomitant anti-epileptic drug (AED)	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
C14467	Sensory system abnormality symmetry type	Symmetry of abnormality for sensory system results	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C13981	Imaging magnetoencephalography spontaneous brain activity duration	Duration of magnetoencephalography (MEG) a non-invasive diagnostic technique that directly measures the magnetic fields produced by electrical currents in the brain	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
C18980	EEG ictal subjective symptoms reported other text	The free-text field related to 'EEG ictal subjective symptoms reported type' specifying other text. Symptoms reported by the participant from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C14430	Tanner stage	Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
C18965	EEG behavioral state recorded other text	The free-text field related to 'EEG behavioral state recorded type' specifying other text. The recorded state(s) of the subject during the electroencephalogram (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C10478	Learning disability diagnosis type	Type of learning disability with which the participant/subject was diagnosed	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
C14418	Medication plasma concentration result	Measurement of the concentration of the drug in the blood plasma	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
C18509	Reflex left arm assessment status	The status of the relfex assessment for the left arm	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C14964	Sedation used indicator	Whether the participant/subject was administered any sedation	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
C14431	Mental status examined type	Type of mental status assessment performed	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C13962	Seizure last occurrence date and time	The date and time the last seizure occurred	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
C19507	Family member seizures or epilepsy indicator	Indicator for someone having told you that you/your family member have seizures or epilepsy	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C14121	Language laterality indicator	Presence or absence of established localization for language skills as indicated by fMRI or Wada	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
C18517	Sensory system abnormality stocking present text	The free-text field to describe the stocking sensory abnormality, a generalised and gradual loss of peripheral nerve function results in a receding stocking pattern	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C13962	Seizure last occurrence date and time	The date and time the last seizure occurred	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
C14439	Motor exam global assessment abnormality type	Global assessment abnormality type found during the motor exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.