CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C59486	C59486	Surgery lesionectomy suspect lesion hypothalamus laterality type	Laterality type relative to a suspected lesion in the hypothalamus area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59426	C59426	Surgery diagnostic electrode foramen ovale anatomic site	Anatomic location(s) of the brain with surgically implanted diagnostic foramen ovale electrodes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1121-C14520	C14520	Device stimulation target anatomic site	The target of stimulation the device acts upon (where the device lead is located)	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1123-C59439	C59439	Surgery diagnostic electrode foramen ovale amygdala laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the amygdala area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59579	C59579	Surgery post-operative cranial nerve deficit complication text	Text describing details for the cranial nerve deficit event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59501	C59501	Surgery neocortical resection orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1106-C21106	C21106	Gait assessment result other text	The free-text field to specify the other result of the gait assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F3064-C59596	C59596	Imaging abnormality subcortical side type	Side of the abnormality below the brain cortex	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1953-C21498	C21498	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest total raw score	Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1123-C59509	C59509	Surgery neocortical resection largest depth estimated value	The largest estimated depth (in cm) of resection that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F3064-C59604	C59604	Imaging malformation cortical development type other text	The free-text field related to 'Imaging malformation cortical development type' specifying other text	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1953-C21506	C21506	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest total raw score	Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1123-C59517	C59517	Surgery multi-lobar occipital lobe resection estimate type	Type of estimated percentage relative to occipital lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59565	C59565	Therapeutic brain stimulation cortical central cortex procedure laterality type	Laterality type relative to the central cortex area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1109-C13965	C13965	Imaging paradigm task design type	Nature of stimuli presented	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1123-C59533	C59533	Surgery corpus callosotomy disconnection tissue type	Type of tissue disconnection relative to corpus callosotomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Epilepsy	Epilepsy
F1123-C59493	C59493	Surgery lesionectomy suspect lesion other anatomic site laterality type	Laterality type relative to a suspected lesion in the another area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1953-C21490	C21490	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest total raw score	Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1123-C59471	C59471	Surgery anterior temporal lobectomy plus extended resection occipital laterality type	Laterality type relative to resection extended into the occipital area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59479	C59479	Surgery amygdalohippocampectomy approach anatomic site other text	The free-text field related to 'Surgery amygdalohippocampectomy approach anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59427	C59427	Surgery diagnostic electrode foramen ovale anatomic site other text	The free-text field related to 'Surgery diagnostic electrode foramen ovale anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59370	C59370	Surgery diagnostic electrode type other text	The free-text field related to 'Surgery diagnostic electrode type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59502	C59502	Surgery neocortical resection dorsolateral frontal laterality type	Laterality type relative to dorsolateral frontal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59550	C59550	Surgery stereotactic lesion orbitofrontal laterality type	Laterality type relative to the orbitofrontal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.