CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1953-C21502	C21502	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest trial number	Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1123-C59513	C59513	Surgery multi-lobar temporal lobe resection percent estimate remove type	Type of estimated percentage relative to temporal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59561	C59561	Therapeutic brain stimulation cortical parietal procedure laterality type	Laterality type relative to the parietal area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1103-C58582	C58582	Genetic presumed genetic epilepsy etiology type	The categorization for genetic or presumed genetic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1123-C59569	C59569	Therapeutic brain stimulation subcortical centromedian thalamus procedure laterality type	Laterality type relative to the centromedian thalamus area in the brain upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59576	C59576	Pathology lesionectomy tumor oligodendroglioma grade	Description of a oligodendroglioma tumor based on how abnormal the cancer cells and tissue look under a microscope and how quickly the cancer cells are likely to grow and spread.	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59374	C59374	Surgery diagnostic electrode depth frontal laterality type	Laterality type relative to diagnostic depth electrodes placement in the frontal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1106-C14460	C14460	Reflex assessment anatomic site	The location or category for reflex assessment of limbs	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1126-C14272	C14272	Adverse event AED action taken text	Text of action taken with the anti-epileptic drug (AED) due to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1106-C14469	C14469	Sensory system modalities affected type	The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1105-C18931	C18931	Global change since prior examination other text	The free-text field related to 'Global change since prior examination result' specifying other text. Global assessment of the difference between the prior and follow-up examinations	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1806-C19505	C19505	Family member mental state awareness level unexplained change indicator	Indicator for an unexplained change in mental state or level of awareness; or an episode of "spacing out which you/your family member could not control, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1123-C59390	C59390	Surgery diagnostic electrode subdural other laterality type	Laterality type relative to diagnostic subdural electrodes on a surgical placement in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1106-C14433	C14433	Cranial nerves global assessment result	The condition of Cranial Nerves	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1806-C19513	C19513	Seizure or epilepsy medication patient reception indicator	Indicator for the patient's reception of medication for seizures or epilepsy	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1123-C59483	C59483	Surgery lesionectomy suspect lesion medial temporal laterality type	Laterality type relative to suspected lesion in the medial temporal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59414	C59414	Surgery diagnostic electrode epidural insula laterality type	Laterality type relative to surgical diagnostic epidural electrodes surgical placement in the insula area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1106-C18932	C18932	Cranial nerves global assessment other text	The free-text field related to 'Cranial nerves global assessment result' specifying other text. The condition of Cranial Nerves	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1123-C59433	C59433	Surgery diagnostic electrode foramen ovale parietal laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the parietal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59498	C59498	Surgery neocortical resection lateral temporal laterality type	Laterality type relative to the lateral temporal area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F3064-C59593	C59593	Imaging abnormality description type other text	The free-text field related to 'Imaging abnormality description type', specifying other text.	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1953-C21495	C21495	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial score	Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1123-C59506	C59506	Surgery neocortical resection size estimate type	Type of tissue size estimation relative to a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F3064-C59601	C59601	Imaging specific abnormality contrast agent use indicator	Indicator as to whether imaging contrast enhancement was used for the specific abnormality imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1953-C21503	C21503	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest trial score	Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.