CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C59477	C59477	Surgery anterior temporal lobectomy plus resection size estimate type	Type of tissue size estimation relative to tissue resectioned beyond during an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1106-C14435	C14435	Nystagmus indicator	Involuntary movements of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1103-C58606	C58606	Other epilepsy etiology type	The categorization for other etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1123-C59532	C59532	Surgery vagus nerve stimulation laterality type	Laterality type relative to vagus nerve stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Epilepsy	Epilepsy
F1123-C59492	C59492	Surgery lesionectomy suspect lesion multifocal laterality type	Laterality type relative to a suspected lesion in the multifocal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1953-C21489	C21489	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest last trial correct digit score	Score for the digits reported correctly by the subject/participant during the last trial of the Digit Span Forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV)	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1106-C18949	C18949	Sensory system modalities affected other text	The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F3064-C59595	C59595	Imaging abnormality cortical contrast agent use indicator	Indicator as to whether an imaging contrast agent was used for the cortical imaging scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1953-C21497	C21497	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest last trial correct digit score	Score for correctly recalled digits for the last trial, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1123-C59508	C59508	Surgery neocortical resection largest lateral extent estimated value	The longest estimated length (in cm) of resection, in the lateral (LAT) dimension, that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F3064-C59603	C59603	Imaging hippocampal sclerosis type other text	The free-text field related to 'Imaging hippocampal sclerosis type' specifying other text	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1123-C59556	C59556	Therapeutic brain stimulation procedure type	Type of method used for therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1117-C18735	C18735	Medication prior or concomitant discontinuation other text	The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1123-C59516	C59516	Surgery multi-lobar occipital lobe resection laterality type	Laterality type relative to occipital lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59564	C59564	Therapeutic brain stimulation cortical medial frontal procedure laterality type	Laterality type relative to the medial frontal area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59524	C59524	Surgery multi-lobar frontal lobe resection laterality type	Laterality type relative to frontal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59486	C59486	Surgery lesionectomy suspect lesion hypothalamus laterality type	Laterality type relative to a suspected lesion in the hypothalamus area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59426	C59426	Surgery diagnostic electrode foramen ovale anatomic site	Anatomic location(s) of the brain with surgically implanted diagnostic foramen ovale electrodes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1121-C14520	C14520	Device stimulation target anatomic site	The target of stimulation the device acts upon (where the device lead is located)	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1123-C59439	C59439	Surgery diagnostic electrode foramen ovale amygdala laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in the amygdala area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59579	C59579	Surgery post-operative cranial nerve deficit complication text	Text describing details for the cranial nerve deficit event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59462	C59462	Surgery diagnostic electrode other type temporal laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in the temporal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59377	C59377	Surgery diagnostic electrode depth occipital laterality type	Laterality type relative to diagnostic depth electrodes surgical placement in the occipital area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1106-C14463	C14463	Reflex plantar left response result	The results from reflex plantar response on the left side	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.