CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 751 - 775 of 883

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1102-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C14377	C14377	Surgery post-operative seizure count	The value counting the number of seizure events that the participant/subject experienced within 30 days after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1117-C18543	C18543	Responses all positive indicator	The yes/no indicator where all the answers on the form were "Yes"	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1123-C14320	C14320	Surgery lesionectomy plus largest lateral extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18979	C18979	EEG ictal responsiveness testing other text	The free-text field related to 'EEG ictal responsiveness testing type' specifying other text. Method applied to test subject's responsiveness or reaction to stimuli from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1104-C18953	C18953	Epilepsy syndrome adolescence adult onset other text	The free-text field related to 'Epilepsy syndrome adolescence adult onset type' specifying other text. Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1102-C58590	C58590	Seizure focal impaired awareness non-motor present status	The status indicating the degree to which a non-motor focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C17638	C17638	Surgery post-operative psychiatric complication text	The text describing details for the psychiatric event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F2685-C13207	C13207	Generalized Anxiety Disorder (GAD-7) - worry too much scale	Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1118-C14417	C14417	Medication plasma concentration last dose date and time	Date (and time if applicable and known) when the last dose was administered before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1111-C14047	C14047	Magnetoencephalography/ electroencephalography source analysis beamformer type	A signal processing technique used for determining location of electric activity that can be accomplished via different approaches	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1123-C14340	C14340	Surgery multiple subpial transection largest lateral dimension estimated value	The longest estimated length (in cm) of tissue transected in the lateral (LAT) dimension during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1102-C58598	C58598	Seizure focal onset epileptic spasm present status	The status indicating the degree to which a focal onset epileptic spasm seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C18587	C18587	Surgery post-operative memory deficit complication text	The text describing details for the memory deficit event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1118-C18548	C18548	Medication anti-epileptic drug plasma concentration log line number	The reference line number of an entry on the anti-epileptic drug (AED) plasma concentration log	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F0803-C09597	C09597	Brief Psychiatric Rating Scale (BPRS) - grandiosity score	The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1114-C08261	C08261	Imaging radioligand dose value	Dose of injected radioligand for the imaging scan	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1123-C14353	C14353	Therapeutic brain stimulation placement method type	The surgical method or technique used during placement of electrodes for therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Epilepsy	Epilepsy
F1109-C13970	C13970	Brain region of interest type	Region of interest in the brain	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1103-C14425	C14425	Epilepsy etiology specific attribution confidence type	The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F3064-C14040	C14040	Imaging vascular disorder type	Type of vascular disorder type for which the assessment is being completed	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F0803-C09605	C09605	Brief Psychiatric Rating Scale (BPRS) - blunted affect score	The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1114-C18529	C18529	Imaging positron emission tomography ictal cortical anatomic site	The anatomic side of the cortex examined or affected using Ictal positron emission tomography (PET)	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy

Displaying 751 - 775 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.