CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1115-C14558	C14558	Seizures recorded only video count	The number of seizures with video ONLY, without electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1110-C13989	C13989	Imaging ictal single-photon emission computed tomography localization rating type	localization rating indicator of imaging using ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1107-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1122-C18569	C18569	Device implanted new extension component model number	The model number of the new extension component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1143-C14119	C14119	Psychological/neuropsychological previous testing indicator	Whether previous psychological/neuropsychological testing was performed on the participant/subject	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1115-C14606	C14606	EEG ictal responsiveness testing type	Method applied to test subject's responsiveness or reaction to stimuli from electroencephalogram (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C18556	C18556	Device implanted intolerable stimulation adverse effect modification description text	The reason for modification of original parameters or original electrode configuration of implanted device due to intolerable stimulation related Adverse Event (AE), specification	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14566	C14566	EEG interictal epileptiform hemispheric type	The hemispheric side for the interictal epileptiform using electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1122-C18578	C18578	Device implanted other revision component type	The modification of the other, unspecified component including explant, replacement, and repositioning	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1144-C14138	C14138	Seizure daily diary seizure type count	The number of seizures of the particular seizure type that the participant/subject experienced on the corresponding date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1115-C14614	C14614	EEG ictal trunk or limb sign type	Specific types of movement of the trunk or limbs or behavior involving the trunk or limbs from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1121-C14517	C14517	Device manufacturer name	The company responsible for development of the device	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1115-C14574	C14574	EEG focal and generalized slowing location type	Location of focal and generalized slowing based on electroencephalography (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1119-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1123-C14354	C14354	Therapeutic brain stimulation placement verification type	The imaging or measurement method used to verify placement of electrodes during therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1102-C58598	C58598	Seizure focal onset epileptic spasm present status	The status indicating the degree to which a focal onset epileptic spasm seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F0803-C09597	C09597	Brief Psychiatric Rating Scale (BPRS) - grandiosity score	The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1106-C14441	C14441	Muscle bulk assessment abnormality indicator	Whether the muscle bulk assessment found any abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F3064-C14041	C14041	Imaging neoplasm status type	Status type of Neoplasm	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1123-C14362	C14362	Therapeutic brain stimulation intermittent pulse off duration	For therapeutic brain stimulation using intermittent pulses, the duration of a cycle in seconds when the stimulus pulse was inactive with no electrical current produced	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C18539	C18539	Medication generic or brand type	The identification of the medication label or manufacture as being either a brand name product or generic product	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1123-C14304	C14304	Surgery anterior temporal lobectomy hippocampus resection estimated length value	The estimated length of tissue (in cm) resected from the hippocampus in the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1103-C14425	C14425	Epilepsy etiology specific attribution confidence type	The level of confidence attributed to the categorizing of specific etiology of epilepsy to genetic or presumed genetic, structural, metabolic, immune, infectious or unknown factors	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
F1115-C18964	C18964	EEG location other text	The free-text field related to 'EEG location type' specifying other text. The location of where the electroencephalogram (EEG) took place	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.