CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1102-C58589	C58589	Seizure focal impaired awareness motor present status	The status indicating the degree to which a motor/observable focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1441-C17439	C17439	EEG other abnormalities text	The free text field to specify other electroencephalography (EEG) abnormalities	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1122-C14534	C14534	Device implanted revision or replacement reason	The reason for device revision/replacement	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1115-C14599	C14599	EEG seizure onset behavioral state type	The behavioral state or condition of the subject at onset of seizure by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C14510	C14510	Device implanted positive electrode count	The number of positive electrodes used by the implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14559	C14559	EEG recording start date and time	Date (and time, if applicable and known) the electroencephalogram (EEG) recording began	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1102-C58597	C58597	Seizure focal onset atonic present status	The status indicating the degree to which a focal onset atonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F0803-C09596	C09596	Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score	The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1122-C18570	C18570	Device implanted new extension component registration number	The registration number of the new extension component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1143-C14120	C14120	Psychological/neuropsychological previous testing age value	Age at which previous psychological/neuropsychological testing was performed on the participant/subject	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1115-C14607	C14607	EEG ictal subjective symptoms reported type	Symptoms reported by the participant from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C18557	C18557	Device implanted log line number	The reference line number of the entry on the implanted device log	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14567	C14567	EEG interictal discharge type	Interictal type of discharge using electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1102-C58607	C58607	Seizure epilepsy generalized subtype status	The element related to the degree to which a generalized seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Epilepsy	Epilepsy
F0803-C09604	C09604	Brief Psychiatric Rating Scale (BPRS) - unusual thought content score	The score of the participant's/subject's unusual thought content, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
F1122-C18579	C18579	Device implanted right extension revision component type	The modification of the right extension component including explant, replacement, and repositioning	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1144-C14139	C14139	Seizure diary completer type	The type of person recording the diary data	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1115-C14615	C14615	EEG ictal trunk or limb sign anatomic site	The specific area of the trunk or specific limbs that are dominant in the responsive behavior	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1121-C14518	C14518	Device component type	The name of a part of the device that has a registration number or serial number	Supplemental	Devices Log	False	Epilepsy	Epilepsy
F1115-C14575	C14575	EEG focal and generalized slowing localized regional lobar or multi-lobar type	Localized region of focal and generalized slowing based on electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1100-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Epilepsy	Epilepsy
F1123-C14297	C14297	Surgery diagnostic electrode type	The type of diagnostic electrode implanted during surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1441-C14560	C14560	EEG recording end date and time	Date (and time, if applicable and known) the electroencephalogram (EEG) recording ended	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C18532	C18532	Electroencephalography ictal no localized onset description text	The free-text field to describe the nonlocalized ictal onset	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.