CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1115-C14560	C14560	EEG recording end date and time	Date (and time, if applicable and known) the electroencephalogram (EEG) recording ended	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1104-C14472	C14472	Epilepsy syndrome age of onset type	Age period during which the epilepsy syndrome first appeared	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1110-C13991	C13991	Imaging ictal single-photon emission computed tomography localization distribution pattern type	Distribution pattern of tracer binding/uptake based on Ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1123-C14310	C14310	Surgery anterior temporal lobectomy plus extended resection anatomic site	The anatomic location(s) where tissue resection extended into adjacent brain structures beyond the boundaries defined for an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18970	C18970	EEG interictal circumstance other text	The free-text field related to 'EEG interictal circumstance type' specifying other text. State subject is in during interictal electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1123-C14376	C14376	Surgery post-operative seizure indicator	Indicator for whether the participant/subject experienced one or more seizures that occurred within 30 days after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1117-C18542	C18542	Responses all known indicator	The yes/no indicator where all the answers on the form were known	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1106-C18508	C18508	Muscle weakness peripheral nerve lesion present text	The free-text field to describe the peripheral nerve lesion present resultling in muscle weakness	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1123-C14319	C14319	Surgery lesionectomy plus largest anterior-posterior extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent anterior-posterior (AP) brain structures that occurred during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18978	C18978	EEG vocalization other text	The free-text field related to 'EEG vocalization type' specifying other text. Method of articulation during electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1123-C14384	C14384	Pathology lesionectomy trauma finding text	The description of the brain tissue abnormality caused by trauma that is found in conjunction with other cellular abnormalities during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F2685-C13206	C13206	Generalized Anxiety Disorder (GAD-7) - not stop worry scale	Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1118-C14416	C14416	Medication plasma concentration blood draw date and time	Date (and time if applicable and known) when the blood specimen was collected for the drug plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1106-C18516	C18516	Sensory system abnormality stocking glove present text	The free-text field to describe the stocking sensory abnormality, a generalised and gradual loss of peripheral nerve function results in a receding glove and stocking pattern	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1123-C14339	C14339	Surgery multiple subpial transection largest anterior-posterior dimension estimated value	The longest estimated length (in cm) of tissue transected in the anterior-posterior (AP) dimension during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1106-C14438	C14438	Motor exam global abnormality present indicator	Global assessment whether an abnormality was present following the motor exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1123-C18586	C18586	Surgery post-operative gastrointestinal complication text	The text describing details for the other gastrointestinal event or complication(s) affecting general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1118-C18547	C18547	Medication anti-epileptic drug plasma concentration log comment text	The free-text field to specify comments regarding the anti-epileptic drug (AED) plasma concentration log	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1106-C18937	C18937	Muscle strength abnormality assessment other text	The free-text field related to 'Muscle strength abnormality assessment type' specifying other text. The muscle strength abnormality type	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1123-C14352	C14352	Therapeutic brain stimulation depth coordinates value	The value measuring depth of placement of an electrode during a surgical intervention that uses of a three-dimensional coordinate system to locate small targets inside The body and to perform some action on them	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Epilepsy	Epilepsy
F1106-C14446	C14446	Muscle strength assessment anatomic site	Anatomic location of the muscle strength as part of the motor examination	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F3064-C13980	C13980	Imaging specific abnormality impression type	Diagnostic conclusion drawn from scan	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1119-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.