CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1115-C14589	C14589	EEG ictal onset hemispheric type	The hemispheric side for ictal onset from electroencephalogram (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C14459	C14459	Reflex exam global assessment result	The global assessment of the ability and condition of reflexes	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1115-C14549	C14549	EEG location type	The location of where the electroencephalogram (EEG) took place	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1441-C17437	C17437	EEG supplemental reason	The free text field to specify the electroencephalography (EEG) supplemental form	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1122-C14532	C14532	Device implanted revision component model number	The model number, lot number, or serial number of the replacement/new component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1115-C14597	C14597	EEG video recording start date and time	Date (and time, if applicable and known) the video electroencephalogram (EEG) recording began	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C14508	C14508	Device implanted stimulation on duration	Time in minutes of stimulation when the implanted device is on	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14557	C14557	Seizures recorded only EEG count	The number of seizures with electroencephalogram (EEG) only (without video)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1143-C14118	C14118	Disability application status	People 5 years old and over are considered to have a disability if they have one or more of the following (a) blindness, deafness, or a severe vision or hearing impairment; (b) a substantial limitation in the ability to perform basic physical activities, such as walking, climbing stairs, reaching, lifting, or carrying; (c) difficulty learning, remembering, or concentrating; or (d)difficulty dressing, bathing, or getting around inside the home	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1115-C14605	C14605	EEG ictal vocalization sequence identifier	Numerical value observed during any of the vocalization types listed from electroencephalogram (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C14565	C14565	EEG interictal epileptiform localized regional lobar or multi-lobar type	Lobar areas for which abnormal brain activity is observed during interictal electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1123-C18587	C18587	Surgery post-operative memory deficit complication text	The text describing details for the memory deficit event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1118-C18548	C18548	Medication anti-epileptic drug plasma concentration log line number	The reference line number of an entry on the anti-epileptic drug (AED) plasma concentration log	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1114-C18529	C18529	Imaging positron emission tomography ictal cortical anatomic site	The anatomic side of the cortex examined or affected using Ictal positron emission tomography (PET)	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1116-C18538	C18538	Medication discontinuation idiosyncratic side effect text	The free-text field to specify the idiosyncratic side effect that resulted in a discontinuation of medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1104-C18502	C18502	Epilepsy syndrome unspecified type	Epilepsy syndromes with unspecified relationships that do not fit into other specified categories	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1102-C58585	C58585	Seizure focal aware motor present status	The status indicating the degree to which a motor/observable focal aware seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58594	C58594	Seizure focal unknown awareness no observable motor present status	The status indicating the degree to which a focal, unknown awareness seizure without observable motor is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1117-C18543	C18543	Responses all positive indicator	The yes/no indicator where all the answers on the form were "Yes"	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1122-C18578	C18578	Device implanted other revision component type	The modification of the other, unspecified component including explant, replacement, and repositioning	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1115-C18531	C18531	Electroencephalography full ictal no localized onset description text	The free-text field to describe the nonlocalized onset of full ictal propagation	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1122-C18569	C18569	Device implanted new extension component model number	The model number of the new extension component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1120-C18556	C18556	Device implanted intolerable stimulation adverse effect modification description text	The reason for modification of original parameters or original electrode configuration of implanted device due to intolerable stimulation related Adverse Event (AE), specification	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1106-C18511	C18511	Reflex right arm assessment status	The status of the relfex assessment for the right arm	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1114-C18530	C18530	Imaging positron emission tomography ictal localization study type	Type of imaging study of the brain during a seizure using Ictal positron emission tomography (PET)	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.