CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1118-C14421	C14421	Medication plasma concentration no adherence clinically significant indicator	Whether the clinician expects or is able to confirm clinically significant non adherence to the prescribed drug dosing regimen based on the drug plasma concentration results	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1123-C14349	C14349	Therapeutic brain stimulation target anatomic site	The anatomic location upon which an electrode will focus electrical impulses in therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18922	C18922	Therapeutic brain stimulation placement method other text	The free-text field related to 'Therapeutic brain stimulation placement method type' specifying other text. The surgical method or technique used during placement of electrodes for therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1114-C13996	C13996	PET localization uptake type	Indicates the degree of absorption or level of ligand tracer binding in the brain scan	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1123-C14357	C14357	Therapeutic brain stimulation pulse current value	The rate of flow of electrical charges through an electrode during stimulation pulses, measured in milliamperes, during a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C10636	C10636	Medication prior or concomitant PRN average monthly frequency	Average frequency per month for medications that are taken on an as needed basis (PRN)	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1123-C14299	C14299	Surgery anterior temporal lobectomy superior temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the superior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1102-C58603	C58603	Seizure epilepsy unknown onset subtype type	The element related to type of unknown onset seizures the participant/subject is experiencing	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C14365	C14365	Surgical language laterality type	The apparent responsibility (or dominance) for production of language that is related to the side of the body and brain being treated during a surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14307	C14307	Surgery anterior temporal lobectomy plus largest lateral extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18967	C18967	EEG interictal epileptiform anatomic other text	The free-text field related to 'EEG interictal epileptiform anatomic site' specifying other text. The anatomic site/location of interictal epileptiform by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1123-C14373	C14373	Pathology lesionectomy infectious or inflammatory finding type	The type of cellular abnormalities arising in conjunction with infection or inflammation that are found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1117-C14498	C14498	Medication anti-epileptic drug seizure despite adjustment indicator	Indicator as to whether, after adjusting dose of anti-epileptic drug (AED), the subject continued to experienced seizures	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1110-C13993	C13993	Imaging ictal single-photon emission computed tomography localization study conclusion status	The Ictal single-photon emission computed tomography (SPECT) localization study conclusion	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1115-C18975	C18975	EEG ictal onset circumstance other text	The free-text field related to 'EEG ictal onset circumstance type' specifying other text. The conditions or circumstances of the subject during Ictal onset by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1104-C14473	C14473	Epilepsy syndrome infant onset type	Common epilepsy syndromes for infants, children less than 2 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C14381	C14381	Surgery post-operative return to operating room indicator	Indicator for whether the participant/subject required another surgery during the post-operative period	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1118-C14413	C14413	Medication plasma concentration medication name	Generic or brand name of the medication for which the plasma concentration is measured	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1111-C13985	C13985	Imaging magnetoencephalography evoked field acquisition epoch number	Magnetoencephalography (MEG) acquisition evoked field epoch number	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1101-C12607	C12607	Education level maternal USA type	Indicator of the highest level of education completed by the participant/subject's mother	Supplemental	Social Status	False	Epilepsy	Epilepsy
F1123-C14330	C14330	Surgery multi-lobar resection lobe anatomic site	The anatomic location(s) for a lobe of the brain from which tissue was removed during surgery to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18983	C18983	EEG ictal other sign other text	The free-text field related to 'EEG ictal other sign type' specifying other text. Other forms of response behavior that have not been covered previously	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1104-C18950	C18950	Epilepsy syndrome neonatal onset other text	The free-text field related to 'Epilepsy syndrome neonatal onset type' specifying other text. Common epilepsy syndromes with onset in the neonatal period (	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F2685-C13211	C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1122-C18955	C18955	Device implanted other text	The free-text field related to 'Device implanted type' specifying other text. The type of device used	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.