CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2685-C13206	C13206	Generalized Anxiety Disorder (GAD-7) - not stop worry scale	Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1118-C14416	C14416	Medication plasma concentration blood draw date and time	Date (and time if applicable and known) when the blood specimen was collected for the drug plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1111-C14046	C14046	Magnetoencephalography/ electroencephalography source analysis distributed source model type	Method used for magnetoencephalography/electroencephalography (MEG/EEG) signal analysis	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1123-C14339	C14339	Surgery multiple subpial transection largest anterior-posterior dimension estimated value	The longest estimated length (in cm) of tissue transected in the anterior-posterior (AP) dimension during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C18950	C18950	Epilepsy syndrome neonatal onset other text	The free-text field related to 'Epilepsy syndrome neonatal onset type' specifying other text. Common epilepsy syndromes with onset in the neonatal period (	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C14352	C14352	Therapeutic brain stimulation depth coordinates value	The value measuring depth of placement of an electrode during a surgical intervention that uses of a three-dimensional coordinate system to locate small targets inside The body and to perform some action on them	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1109-C13968	C13968	Imaging functional magnetic resonance imaging analysis type	Types of functional magnetic resonance imaging (fMRI) analytic methods	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1106-C18939	C18939	Muscle weakness neurological anatomic other text	The free-text field related to 'Muscle weakness neurological anatomic site' specifying other text. Anatomic location of neurological muscle weakness	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1115-C14581	C14581	EEG ictal evaluation onset date	Date (and time, if applicable and known) of the ictal onset by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1123-C18924	C18924	Pathology lesionectomy tumor finding other text	The free-text field related to 'Pathology lesionectomy tumor finding type' specifying other text. The type or classification of malignant tumor tissue found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1106-C14448	C14448	Muscle strength abnormality assessment type	The muscle strength abnormality type	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1441-C17429	C17429	EEG abnormal indicator	The yes/no indicator for abnormal assessment of electroencephalography (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C14589	C14589	EEG ictal onset hemispheric type	The hemispheric side for ictal onset from electroencephalogram (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1106-C14459	C14459	Reflex exam global assessment result	The global assessment of the ability and condition of reflexes	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1115-C14549	C14549	EEG location type	The location of where the electroencephalogram (EEG) took place	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1441-C17437	C17437	EEG supplemental reason	The free text field to specify the electroencephalography (EEG) supplemental form	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1122-C14532	C14532	Device implanted revision component model number	The model number, lot number, or serial number of the replacement/new component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1115-C14597	C14597	EEG video recording start date and time	Date (and time, if applicable and known) the video electroencephalogram (EEG) recording began	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C14508	C14508	Device implanted stimulation on duration	Time in minutes of stimulation when the implanted device is on	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14557	C14557	Seizures recorded only EEG count	The number of seizures with electroencephalogram (EEG) only (without video)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1143-C14118	C14118	Disability application status	People 5 years old and over are considered to have a disability if they have one or more of the following (a) blindness, deafness, or a severe vision or hearing impairment; (b) a substantial limitation in the ability to perform basic physical activities, such as walking, climbing stairs, reaching, lifting, or carrying; (c) difficulty learning, remembering, or concentrating; or (d)difficulty dressing, bathing, or getting around inside the home	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1115-C14605	C14605	EEG ictal vocalization sequence identifier	Numerical value observed during any of the vocalization types listed from electroencephalogram (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C14565	C14565	EEG interictal epileptiform localized regional lobar or multi-lobar type	Lobar areas for which abnormal brain activity is observed during interictal electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1144-C14136	C14136	Seizure daily diary no seizure indicator	The indicator of whether the participant/subject experienced NO seizures on the corresponding date	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
F1115-C14613	C14613	EEG ictal face sign sequence identifier	Numerical value representing subject's responsiveness through facial movement from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.