CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 883
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19505 Family member mental state awareness level unexplained change indicator

Indicator for an unexplained change in mental state or level of awareness; or an episode of "spacing out which you/your family member could not control, lasting about 5 minutes or less, that a family member has had or told you that you/they had

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C19506 Family member repeated unusual attack or convulsion other type indicator

Indicator for any other type of repeated unusual attacks or convulsions lasting about 5 minutes or less that a family member has had or told you that you/they had

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C19504 Family member body uncontrolled movement indicator

Indicator for uncontrolled movements of part or all of the body such as twitching, jerking, shaking, or going limp, lasting about 5 minutes or less, that a family member has had or told you that you/they had

Supplemental Post-Traumatic Epilepsy Screening Form Epilepsy Epilepsy
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Epilepsy Epilepsy
C18735 Medication prior or concomitant discontinuation other text

The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication

Supplemental Anti Epileptic Drug (AED) Log Epilepsy Epilepsy
C18735 Medication prior or concomitant discontinuation other text

The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication

Supplemental AED Resistance Log Epilepsy Epilepsy
C18767 Temperature measurement other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Epilepsy Epilepsy
C18732 Language primary other text

The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often

Supplemental Demographics Epilepsy Epilepsy
C18659 Unexpected adverse event indicator

The indicator of whether the adverse event is unexpected

Supplemental Adverse Event Tracking Log Epilepsy Epilepsy
C14377 Surgery post-operative seizure count

The value counting the number of seizure events that the participant/subject experienced within 30 days after surgery

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14320 Surgery lesionectomy plus largest lateral extent of resection estimated value

The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during a surgery to remove an anatomical abnormality in the brain

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C18979 EEG ictal responsiveness testing other text

The free-text field related to 'EEG ictal responsiveness testing type' specifying other text. Method applied to test subject's responsiveness or reaction to stimuli from electroencephalogram (EEG)

Supplemental Scalp Electroencephalography (EEG) Epilepsy Epilepsy
C58602 Seizure epilepsy unknown onset subtype status

The element related to the degree to which a seizure of unknown onset is present

Supplemental Classification of Seizures Epilepsy Epilepsy
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Epilepsy Epilepsy
C14417 Medication plasma concentration last dose date and time

Date (and time if applicable and known) when the last dose was administered before the blood draw for the plasma concentration measurement

Supplemental AED Plasma Concentration Epilepsy Epilepsy
C14047 Magnetoencephalography/ electroencephalography source analysis beamformer type

A signal processing technique used for determining location of electric activity that can be accomplished via different approaches

Supplemental Magnetoencephalography (MEG) Acquisition Epilepsy Epilepsy
C14340 Surgery multiple subpial transection largest lateral dimension estimated value

The longest estimated length (in cm) of tissue transected in the lateral (LAT) dimension during multiple subpial transection (MST), a surgery cutting nerve fibers in the gray matter of the brain

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Supplemental Anti Epileptic Drug (AED) Log Epilepsy Epilepsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Epilepsy Epilepsy
C08261 Imaging radioligand dose value

Dose of injected radioligand for the imaging scan

Supplemental Positron Emission Tomography (PET) Localization Epilepsy Epilepsy
C14353 Therapeutic brain stimulation placement method type

The surgical method or technique used during placement of electrodes for therapeutic brain stimulation

Supplemental-Highly Recommended Surgery and Pathology Epilepsy Epilepsy
C14472 Epilepsy syndrome age of onset type

Age period during which the epilepsy syndrome first appeared

Supplemental-Highly Recommended Syndromes by Age of Onset Epilepsy Epilepsy
C13970 Brain region of interest type

Region of interest in the brain

Supplemental Functional Magnetic Resonance Imaging (fMRI) Epilepsy Epilepsy
C10678 Employment full-time status

Status of participant/subject's current full-time employment

Supplemental Social Status Epilepsy Epilepsy
C14040 Imaging vascular disorder type

Type of vascular disorder type for which the assessment is being completed

Supplemental Magnetic Resonance Imaging (MRI) Epilepsy Epilepsy
Displaying 276 - 300 of 883

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.