CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1806-C19504	C19504	Family member body uncontrolled movement indicator	Indicator for uncontrolled movements of part or all of the body such as twitching, jerking, shaking, or going limp, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1806-C19505	C19505	Family member mental state awareness level unexplained change indicator	Indicator for an unexplained change in mental state or level of awareness; or an episode of "spacing out which you/your family member could not control, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1806-C19506	C19506	Family member repeated unusual attack or convulsion other type indicator	Indicator for any other type of repeated unusual attacks or convulsions lasting about 5 minutes or less that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
F1107-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1100-C18732	C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
F1101-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Epilepsy	Epilepsy
F1116-C18735	C18735	Medication prior or concomitant discontinuation other text	The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1117-C18735	C18735	Medication prior or concomitant discontinuation other text	The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1126-C18659	C18659	Unexpected adverse event indicator	The indicator of whether the adverse event is unexpected	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1123-C14374	C14374	Pathology lesionectomy congenital malformation finding type	The type of cortical congenital malformation or developmental abnormality found in conjunction with other cellular abnormalities identified during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14317	C14317	Surgery lesionectomy resection extent type	The extent of resection to remove an anatomical abnormality in the brain during a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18976	C18976	EEG seizure onset behavioral state other text	The free-text field related to 'EEG seizure onset behavioral state type' specifying other text. The behavioral state or condition of the subject at onset of seizure by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1102-C58599	C58599	Seizure epilepsy generalized classification type	The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as cortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1107-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1123-C14382	C14382	Surgery post-operative complication text	Text describing the complication that the participant/subject experienced after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1118-C14414	C14414	Medication plasma concentration last dose value	Amount of last dose taken before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1111-C14044	C14044	Magnetoencephalography/ electroencephalography source analysis volume conductor type	Possible magnetic noise suppression methods and computational models used for magnetoencephalography (MEG)/EEG analysis	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F2685-C13212	C13212	Generalized Anxiety Disorder (GAD-7) - total score	Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1118-C14628	C14628	Medication plasma concentration result unit of measure UCUM code	The Unified Code for Units of Measure (UCUM) code that represents the unit of measure for the drug plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1114-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1123-C14350	C14350	Therapeutic brain stimulation anterior-posterior coordinates value	The value measuring anterior-posterior placement of an electrode during a surgical intervention that uses of a three-dimensional coordinate system to locate small targets inside The body and to perform some action on them	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1104-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F3064-C13978	C13978	Imaging abnormality subcortical anatomic site	The location(s) of the abnormality below the brain cortex	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1114-C13997	C13997	PET localization distribution pattern type	General pattern of tracer binding/uptake based on the Positron Emission Tomography (PET) scan	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.