CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C21499	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest response text	Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C21507	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span subtest total raw score	Total score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C21106	Gait assessment result other text	The free-text field to specify the other result of the gait assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C21107	Gait abnormality assessment other text	The free-text field for other type of abnormal gait	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C19513	Seizure or epilepsy medication patient reception indicator	Indicator for the patient's reception of medication for seizures or epilepsy	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C19512	Diagnosis giver type	Type of professional who gave the diagnosis	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C19511	Seven days post traumatic brain injury seizure occurrence indicator	Indicator for the occurrence of seizure(s) later than seven days after the date of the traumatic brain injury	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C19510	Post traumatic brain injury diagnosis epilepsy seizure diagnosis indicator	Indicator for the diagnosis of the participant with epilepsy, a seizure disorder, or a single seizure after the date of the traumatic brain injury diagnosis	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C19509	Pre traumatic brain injury seizure or epilepsy indicator	Indicator for seizures or epilepsy that the patient had prior to the traumatic brain injury	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C19508	Source of information queried type	Type of source of information queried	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C19507	Family member seizures or epilepsy indicator	Indicator for someone having told you that you/your family member have seizures or epilepsy	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C19504	Family member body uncontrolled movement indicator	Indicator for uncontrolled movements of part or all of the body such as twitching, jerking, shaking, or going limp, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C19505	Family member mental state awareness level unexplained change indicator	Indicator for an unexplained change in mental state or level of awareness; or an episode of "spacing out which you/your family member could not control, lasting about 5 minutes or less, that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C19506	Family member repeated unusual attack or convulsion other type indicator	Indicator for any other type of repeated unusual attacks or convulsions lasting about 5 minutes or less that a family member has had or told you that you/they had	Supplemental	Post-Traumatic Epilepsy Screening Form	False	Epilepsy	Epilepsy
C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
C18666	Body system other text	The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
C18735	Medication prior or concomitant discontinuation other text	The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Epilepsy	Epilepsy
C18735	Medication prior or concomitant discontinuation other text	The free-text field related to 'Medication prior or concomitant discontinuation reason' specifying other text. Reason the participant/subject discontinued taking the prior or concomitant medication	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
C18659	Unexpected adverse event indicator	The indicator of whether the adverse event is unexpected	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C58599	Seizure epilepsy generalized classification type	The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as cortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
C14611	EEG ictal face sign type	The face sign type from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C10626	Condition diary date and time	Date (and time, if applicable and known) the diary data are recorded	Supplemental-Highly Recommended	Seizure Diary	False	Epilepsy	Epilepsy
C14571	EEG focal and generalized slowing focus text	The cerebral focus for focal and generalized slowing based on electroencephalography (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.