CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.	Core	General Core	False	Epilepsy	Epilepsy
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth.	Core	General Core	False	Epilepsy	Epilepsy
C58606	Other epilepsy etiology type	The categorization for other etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
C58605	Metabolic toxic epilepsy etiology type	The categorization for metabolic toxic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
C58587	Structural epilepsy etiology type	The categorization for structural etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
C58582	Genetic presumed genetic epilepsy etiology type	The categorization for genetic or presumed genetic etiology of epilepsy	Supplemental-Highly Recommended	Classification of Etiology	False	Epilepsy	Epilepsy
C58580	Specific epilepsy etiology classification type	The categorization for etiology of epilepsy as linked to identified genetic or presumed genetic, structural, metabolic, immune, infectious or unknown causes. Genetic (or presumed) causes of epilepsy are understood to be the direct result of a known or presumed genetic defect(s) in which seizures are the core symptom of the disorder. Unknown cause is meant to be taken neutrally and to designate that the nature of the underlying cause is not yet unknown. Structural, metabolic, immune or infectious causes are due to a distinct condition that has been associated with substantially increased risk of developing epilepsy as demonstrated in appropriately designed studies.	Core	Classification of Etiology	False	Epilepsy	Epilepsy
C21487	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial score	Score for the digit span forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C21504	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest item score	Item score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C21505	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest last trial correct digit score	Last digit correct, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure' specifying other text. Dosage unit of measure of the prior or concomitant medication administered.	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
C55985	California Verbal Learning Test- Second Edition (CVLT-II) - Total recognition discriminability standard score	Total standard score for recognition discriminability of the long delay trials, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55984	California Verbal Learning Test- Second Edition (CVLT-II) - Total recognition discriminability raw score	Total raw score for recognition discriminability of the long delay trials, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55983	California Verbal Learning Test - Second Edition (CVLT-II) - Total trial 1 5 standard score	Total standard score for trials 1-5, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55982	California Verbal Learning Test - Second Edition (CVLT-II) - T-score	T-score, calculated based on performance in trials 1-5, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55981	California Verbal Learning Test - Second Edition (CVLT - II) - Trial correct word number	Number of correct words recited by the subject for given trial/list, as part of California Verbal Learning Test- Second Edition (CVLT-II). Also used as a trial/list raw score.	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55980	California Verbal Learning Test - Second Edition (CVLT-II) - Long delay forced choice recognition trial total accuracy score	Total accuracy score for long delay forced choice recognition trials, recorded in percentile, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55979	California Verbal Learning Test - Second Edition (CVLT-II) - Across trial consistency score	Across trials consistency score, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55978	California Verbal Learning Test - Second Edition (CVLT-II) - Total false positive standard score	Total standard score for false-positives produced by the subject, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55976	California Verbal Learning Test - Second Edition (CVLT-II) - Total false positive raw score	Total raw score for false-positives produced by the subject, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55975	California Verbal Learning Test - Second Edition (CVLT-II) - Total false positive count	Total number of false-positives produced by the subject, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55974	California Verbal Learning Test - Second Edition (CVLT-II) - Forced choice recognition hit standard score	Standard score for forced choice recognition hits of the long delay trial, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55973	California Verbal Learning Test - Second Edition (CVLT-II) - Forced choice recognition hit raw score	Raw score for forced choice recognition hits of the long delay trial, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C55972	California Verbal Learning Test - Second Edition (CVLT-II) - Total response bias score	Score for total response bias, as part of the California Verbal Learning Test (CVLT-II).	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.