CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C14363	C14363	Therapeutic brain stimulation postoperative MRI verification indicator	The indicator for whether electrode stimulus parameters were verified using magnetic resonance imaging (MRI) after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C18951	C18951	Epilepsy syndrome infant onset other text	The free-text field related to 'Epilepsy syndrome infant onset type' specifying other text. Common epilepsy syndromes for infants, children less than 2 years of age	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1110-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1123-C14305	C14305	Surgery anterior temporal lobectomy plus adjacent resection indicator	The indicator for whether the resection extended to adjacent brain structures beyond the boundaries defined for an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18965	C18965	EEG behavioral state recorded other text	The free-text field related to 'EEG behavioral state recorded type' specifying other text. The recorded state(s) of the subject during the electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1123-C14371	C14371	Pathology lesionectomy tumor finding type	The type or classification of malignant tumor tissue found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1117-C14496	C14496	Medication anti-epileptic drug three months therapy without discontinuation indicator	Indicator as to whether the duration of therapy exceeded 3 months without discontinuation due to adverse events	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1110-C13991	C13991	Imaging ictal single-photon emission computed tomography localization distribution pattern type	Distribution pattern of tracer binding/uptake based on Ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1123-C14313	C14313	Surgery amygdalohippocampectomy hippocampus estimated length value	The estimated length of tissue (in cm) resected from the hippocampus in the brain during an amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18973	C18973	EEG full ictal propagation location other text	The free-text field related to 'EEG full ictal propagation location type' specifying other text. The location on electroencephalogram (EEG) for full ictal propagation	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1123-C14379	C14379	Surgery post-operative medical complication type	The type of event or complication(s) affecting the general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1111-C13983	C13983	Imaging magnetoencephalography spontaneous acquisition sampling frequency	The number of samples per second (or per other unit) taken from a continuous signal to make a discrete signal using spontaneous acquisition	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1123-C14322	C14322	Surgery lesionectomy plus resected tissue estimated volume value	The estimated volume (in cm^3) of tissue resected from adjacent brain structures during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18981	C18981	EEG ictal face sign other text	The free-text field related to 'EEG ictal face sign type' specifying other text. The face sign type from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1102-C58604	C58604	Seizure unclassified classification status	The element related to the degree to which unclassified seizures are present	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F2685-C13209	C13209	Generalized Anxiety Disorder (GAD-7) - restless scale	Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1118-C14419	C14419	Medication plasma concentration result unit of measure	Unit of measure used for the drug plasma concentration	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1123-C14342	C14342	Surgery multiple subpial transection with resection indicator	Indicator for whether brain tissue was removed at the same time that nerve fibers in the gray matter were cut during multiple subpial transection (MST) surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F3064-C13975	C13975	Imaging abnormality count	The number of imaging abnormality types	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1119-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
F1114-C13994	C13994	Imaging PET localization processing type	Type of processing performed on image produced by positron emission tomography (PET) localization	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1123-C14355	C14355	Therapeutic brain stimulation pulse frequency	The electrical frequency measured for stimulation pulses, reported in cycles per second, during a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C02025	C02025	Medication prior or concomitant RXNorm code	Code for name of the prior/concomitant agent or drug administered	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1104-C14475	C14475	Epilepsy syndrome childhood onset type	Common epilepsy syndromes for children, 2-12 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1106-C18942	C18942	Cerebellar or coordination assessment abnormality present other text	The free-text field related to 'Cerebellar or coordination assessment abnormality present status' specifying other text. Whether the cerebellar/coordination assessment found abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.