CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 176 - 200 of 1360

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C18507	Muscle weakness neuropathic weakness present text	The free-text field to describe the neuropathic weakness present resultling in muscle weakness	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C18573	Device implanted new lead component model number	The model number of the new lead component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
C18515	Sensory system abnormality sensory nerve present text	The free-text field to describe the sensory nerve abnormality	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C18536	Medication non-anti-epileptic drug prior or concomitant dose frequency	The frequency of use of a prior/concomitant non-anti-epileptic drug (NAED)	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
C18535	Focal and generalized slowing no local onset description text	The free-text field to describe the nonlocalized onset of focal and generalized slowing	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
C18540	Medication dosing schedule administration time	Medication administration time schedule	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
C18521	Imaging single-photon emission computed tomography ictal localization condition type	The seizure condition at the time of imaging of the brain using Ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
C18584	Surgery post-operative altered state complication text	The text describing details for the altered mental status event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C18552	Medication non-anti-epileptic drug log line number	The referenced line number of an entry on the non-anti-epileptic drug (NAED) plasma concentration log	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
C19072	Epilepsy syndrome unspecified other text	The free-text field related to 'Epilepsy syndrome unspecified type' specifying other text. Epilepsy syndromes with unspecified relationships that do not fit into other specified categories	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
C58593	Seizure focal unknown awareness observable motor present status	The status indicating the degree to which a focal, unknown awareness seizure with observable motor is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
C18565	Device implanted nerve stimulator revision component type	The modification of implanted nerve stimulator (INS) components including explant, replacement, and repositioning	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
C18508	Muscle weakness peripheral nerve lesion present text	The free-text field to describe the peripheral nerve lesion present resultling in muscle weakness	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C18574	Device implanted new lead component registration number	The registration number of the new lead component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
C18516	Sensory system abnormality stocking glove present text	The free-text field to describe the stocking sensory abnormality, a generalised and gradual loss of peripheral nerve function results in a receding glove and stocking pattern	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
C18537	Medication discontinuation dose related side effect text	The free-text field to specify the dose-related side effect that resulted in a discontinuation of medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
C58584	Seizure focal aware present status	The status indicating the degree to which a focal aware seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
C18541	Medication anti-epileptic drug name	Name of the prior or concomitant anti-epileptic drug (AED)	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
C18555	Device implanted comment text	The free-text field to capture any comments related to an implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
C18585	Surgery post-operative aphasia complication text	The text describing details for the aphasia event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C18545	Medication anti-epileptic drug log line number	The referenced line number of an entry on the anti-epileptic drug (AED) log	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
C18553	Medication non-anti-epileptic drug prior or concomitant use day count	The numeric count of days a non-anti-epileptic drug (NAED) was taken before or during a study	Supplemental	Non Anti Epileptic Medication Log	False	Epilepsy	Epilepsy
C58594	Seizure focal unknown awareness no observable motor present status	The status indicating the degree to which a focal, unknown awareness seizure without observable motor is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
C18567	Device implanted left extension revision component type	The modification of the left extension component including explant, replacement, and repositioning	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
C18509	Reflex left arm assessment status	The status of the relfex assessment for the left arm	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

Displaying 176 - 200 of 1360

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.