CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C17651	American National Adult Reading Test (AmNART) - participant name	American National Adult Reading Test (AmNART) name of the participant	Supplemental	American National Adult Reading Test (AmNART)	True	Epilepsy	Epilepsy
C17643	Surgical or therapeutic procedure text	The text describing the surgical or therapeutic procedure received by the participant/subject	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
C15910	Assessment date and time	The date of participant's injury	Supplemental	Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2)	True	Epilepsy	Epilepsy
C17399	Global unique identifier number	Global Unique ID (GUID) which uniquely identifies a subject	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02311	Adverse event MedDRA lower level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02304	Adverse event relatedness scale	Scale of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02307	Adverse event verbatim term text	Text that describes the adverse event word for word as described by the participant/subject	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02308	Adverse event during study indicator	Indicator of whether the participant/subject experienced any adverse events during the study	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C02300	Adverse event study intervention action taken type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C00024	Language primary ISO code	Code (ISO 639-2) for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
C00025	Language primary text	Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
C08147	Data source	Source of the data provided on the case report form	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Epilepsy	Epilepsy
C09597	Brief Psychiatric Rating Scale (BPRS) - grandiosity score	The score of the participant's/subject's grandiosity, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C09605	Brief Psychiatric Rating Scale (BPRS) - blunted affect score	The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C09598	Brief Psychiatric Rating Scale (BPRS) - depressive mood score	The score of the participant's/subject's depressive mood, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C09606	Brief Psychiatric Rating Scale (BPRS) - excitement score	The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C09590	Brief Psychiatric Rating Scale (BPRS) - somatic concern score	The score of the participant's/subject's somatic concern, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C02303	Adverse event outcome status	Final status of the participant/subject related to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
C09599	Brief Psychiatric Rating Scale (BPRS) - hostility score	The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C09607	Brief Psychiatric Rating Scale (BPRS) - disorientation score	The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C09591	Brief Psychiatric Rating Scale (BPRS) - anxiety score	The score of the participant's/subject's anxiety, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy
C08258	Imaging radioligand type	Isotope-labeled bioactive compound (generic or common name) used in the imaging scan	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
C09600	Brief Psychiatric Rating Scale (BPRS) - suspiciousness score	The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.