CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C14382	C14382	Surgery post-operative complication text	Text describing the complication that the participant/subject experienced after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1118-C14414	C14414	Medication plasma concentration last dose value	Amount of last dose taken before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1114-C13999	C13999	PET localization study type	The PET localization study conclusion	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F2685-C13212	C13212	Generalized Anxiety Disorder (GAD-7) - total score	Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1118-C14628	C14628	Medication plasma concentration result unit of measure UCUM code	The Unified Code for Units of Measure (UCUM) code that represents the unit of measure for the drug plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1123-C14350	C14350	Therapeutic brain stimulation anterior-posterior coordinates value	The value measuring anterior-posterior placement of an electrode during a surgical intervention that uses of a three-dimensional coordinate system to locate small targets inside The body and to perform some action on them	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1110-C13988	C13988	Imaging ictal single-photon emission computed tomography localization processing type	Processing type of imaging of the brain during a seizure using Ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1107-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F3064-C13978	C13978	Imaging abnormality subcortical anatomic site	The location(s) of the abnormality below the brain cortex	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1123-C14358	C14358	Therapeutic brain stimulation pulse polarity type	The initial orientation or setting for polarity of stimulus pulses for a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C14142	C14142	Medication prior or concomitant formulation text	Text describing the formulation of the prior/concomitant medication, such as extended release, liquid, sprinkle, etc	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1123-C14300	C14300	Surgery anterior temporal lobectomy middle temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the middle temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1110-C18898	C18898	Imaging ictal single-photon emission computed tomography localization cortical anatomic other text	The free-text field related to 'Imaging ictal single-photon emission computed tomography localization cortical anatomic site' specifying other text. The cortical location of tracer binding/uptake based on Ictal single-photon emission computed tomography (SPECT)	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1107-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1123-C14366	C14366	Surgery intraoperative electrocorticogram type	The type of electrocorticogram (ECoG) used during a surgical procedure. ECoG is the practice of using electrodes placed directly on the exposed surface of the brain to record electrical activity from the cerebral cortex	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14308	C14308	Surgery anterior temporal lobectomy plus largest depth of resection estimated value	The largest estimated depth (in cm) of resection into adjacent brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18968	C18968	EEG interictal discharge other text	The free-text field related to 'EEG interictal discharge type' specifying other text. Interictal type of discharge using electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1111-C14046	C14046	Magnetoencephalography/ electroencephalography source analysis distributed source model type	Method used for magnetoencephalography/electroencephalography (MEG/EEG) signal analysis	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1120-C14506	C14506	Device implanted frequency	The electrical frequency (number of complete cycles of a periodic process occurring per unit time) as set in the implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14613	C14613	EEG ictal face sign sequence identifier	Numerical value representing subject's responsiveness through facial movement from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C14573	C14573	EEG focal and generalized slowing type	The relative duration of focal and generalized slowing observed in the brain waves of the electroencephalogram (EEG) and if slowing is present following seizure activity	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1441-C19056	C19056	EEG data other text	The free-text field related to 'EEG data type' specifying other text. The data type of the Electroencephalography (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1143-C14116	C14116	Learning disability or attention deficit diagnosis indicator	Whether the participant/subject was ever given formal diagnosis of any learning disability or diagnosed with ADD/ADHD (Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder)	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1120-C14514	C14514	Device implanted modification reason	The reason for modification of parameters or electrode configuration of original implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.