CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C14349	C14349	Therapeutic brain stimulation target anatomic site	The anatomic location upon which an electrode will focus electrical impulses in therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1100-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Epilepsy	Epilepsy
F1123-C18922	C18922	Therapeutic brain stimulation placement method other text	The free-text field related to 'Therapeutic brain stimulation placement method type' specifying other text. The surgical method or technique used during placement of electrodes for therapeutic brain stimulation	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1114-C13996	C13996	PET localization uptake type	Indicates the degree of absorption or level of ligand tracer binding in the brain scan	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1123-C14357	C14357	Therapeutic brain stimulation pulse current value	The rate of flow of electrical charges through an electrode during stimulation pulses, measured in milliamperes, during a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1116-C10636	C10636	Medication prior or concomitant PRN average monthly frequency	Average frequency per month for medications that are taken on an as needed basis (PRN)	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1104-C14479	C14479	Epilepsy syndrome less specific age relationship type	Common epilepsy syndromes that have a less specific age or no association with a specific age on onset	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C14299	C14299	Surgery anterior temporal lobectomy superior temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the superior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1102-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C14365	C14365	Surgical language laterality type	The apparent responsibility (or dominance) for production of language that is related to the side of the body and brain being treated during a surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C18953	C18953	Epilepsy syndrome adolescence adult onset other text	The free-text field related to 'Epilepsy syndrome adolescence adult onset type' specifying other text. Common epilepsy syndromes for adolescents, children 12-18 years of age, and adults, person older than 18 years of age	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C14307	C14307	Surgery anterior temporal lobectomy plus largest lateral extent of resection estimated value	The longest estimated length (in cm) of resection into adjacent lateral (LAT) brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18967	C18967	EEG interictal epileptiform anatomic other text	The free-text field related to 'EEG interictal epileptiform anatomic site' specifying other text. The anatomic site/location of interictal epileptiform by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1123-C14373	C14373	Pathology lesionectomy infectious or inflammatory finding type	The type of cellular abnormalities arising in conjunction with infection or inflammation that are found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1117-C14498	C14498	Medication anti-epileptic drug seizure despite adjustment indicator	Indicator as to whether, after adjusting dose of anti-epileptic drug (AED), the subject continued to experienced seizures	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1110-C13993	C13993	Imaging ictal single-photon emission computed tomography localization study conclusion status	The Ictal single-photon emission computed tomography (SPECT) localization study conclusion	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1115-C18975	C18975	EEG ictal onset circumstance other text	The free-text field related to 'EEG ictal onset circumstance type' specifying other text. The conditions or circumstances of the subject during Ictal onset by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1143-C14115	C14115	Family history sinistrality indicator	Whether the participant/subject has a family history of sinistrality, or left-handedness/preference for using the left hand	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1115-C14602	C14602	EEG ictal responsiveness level type	The level of responsiveness of the subject as assessed by electroencephalogram (EEG).	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C14513	C14513	Device implanted negative electrode location text	The location of negative electrodes from the implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14562	C14562	EEG interictal epileptiform anatomic site	The anatomic site/location of interictal epileptiform by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1143-C18801	C18801	Learning disability diagnosis other text	The free-text field related to 'Learning disability diagnosis type' specifying other text. Type of learning disability with which the participant/subject was diagnosed	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1115-C14610	C14610	EEG ictal eye sign sequence identifier	Numerical value representing subject's responsiveness through eye movement from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1120-C18954	C18954	Device implanted modification other text	The free-text field related to 'Device implanted modification reason' specifying other text. The reason for modification of parameters or electrode configuration of original implanted device	Supplemental	Implanted Devices Log	False	Epilepsy	Epilepsy
F1115-C14570	C14570	EEG interictal circumstance type	State subject is in during interictal electroencephalography (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.