CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C14375	C14375	Surgery pathology hospital day count	The duration in days for admission of the participant/subject to the hospital for surgery or pathology procedures	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14318	C14318	Surgery lesionectomy plus adjacent resection indicator	The indicator for whether resection extended to adjacent structures during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18977	C18977	EEG ictal responsiveness level other text	The free-text field related to 'EEG ictal responsiveness level type' specifying other text. The level of responsiveness of the subject as assessed by electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1102-C58600	C58600	Seizure epilepsy generalized motor subtype type	The element related to type of motor generalized seizures the participant/subject is experiencing	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C14383	C14383	Surgery post-operative complication resolved date	The date of resolution of symptoms for a complication the participant/subject experienced after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F2685-C13205	C13205	Generalized Anxiety Disorder (GAD-7) - feeling nervous scale	Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1118-C14415	C14415	Medication plasma concentration last dose unit of measure	Dosage unit of measure for the last dose taken before the blood draw for the plasma concentration measurement	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1111-C14045	C14045	Magnetoencephalography/ electroencephalography source analysis dipole type	A closed circulation of electric current that can be present in different metrics during an magnetoencephalography/electroencephalography (MEG/EEG)	Supplemental	Magnetoencephalography (MEG) Acquisition	False	Epilepsy	Epilepsy
F1115-C21619	C21619	EEG ictal face sign laterality other text	The free-text field to specify other location of face sign from electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1109-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1123-C14351	C14351	Therapeutic brain stimulation lateral coordinates value	The value measuring lateral placement of an electrode during a surgical intervention that uses of a three-dimensional coordinate system to locate small targets inside The body and to perform some action on them	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C14470	C14470	Epilepsy syndrome likelihood present type	Certainty of whether the participant/subject has or had the epilepsy syndrome for the particular age period	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1114-C13998	C13998	PET localization cortical anatomic site	The cortical anatomical site of tracer binding/uptake based on positron emission tomography (PET)	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1123-C14359	C14359	Therapeutic brain stimulation pulse width value	The time interval between the first and last instants at which the instantaneous amplitude reaches a stated fraction of the peak pulse amplitude	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1104-C14483	C14483	Epilepsy syndrome other localization type	Epilepsy syndromes related to other localizations	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C14301	C14301	Surgery anterior temporal lobectomy inferior temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the inferior temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1102-C58583	C58583	Seizure epilepsy focal classification type	The type of focal epileptic seizures, considered to originate within networks limited to one hemisphere, which may be discretely localized or more widely distributed, and may originate in subcortical structures, experience by the participant/subject	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1123-C14367	C14367	Surgery intraoperative cortical stimulation mapping indicator	The indicator for whether a map of the locations where brain cortex tissue stimulated was created during the surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1117-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	AED Resistance Log	False	Epilepsy	Epilepsy
F1110-C13962	C13962	Seizure last occurrence date and time	The date and time the last seizure occurred	Supplemental	Ictal Single-photon Emission Computed Tomography (SPECT) Localization	False	Epilepsy	Epilepsy
F1123-C14309	C14309	Surgery anterior temporal lobectomy plus resected tissue estimated volume value	The estimated volume (in cm^3) of tissue resected from adjacent brain structures during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C18969	C18969	EEG interictal periodic discharge other text	The free-text field related to 'EEG interictal periodic discharge type' specifying other text. Distinctive electroencephalogram (EEG) waves or complexes, distinguished from background EEG activity, that suggests a seizure tendency	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1441-C17436	C17436	EEG short form note text	Notes to Electroencephalography (EEG) reviewers	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1122-C14531	C14531	Device implanted revision modification type	The modification of the components including explant, replacement, and repositioning	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1126-C02310	C02310	Adverse event CTCAE low level term name	Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.