CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1 - 25 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1126-C02309	C02309	Serious adverse event indicator	Indicator of whether the adverse event is serious	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02310	C02310	Adverse event CTCAE term name	Name that represents the Common Terminology Criteria for Adverse Events (CTCAE) term for an adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02311	C02311	Adverse event MedDRA lowest level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lowest Level Term (LLT) for an adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C18659	C18659	Unexpected adverse event indicator	Indicator of whether the adverse event is unexpected	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02308	C02308	Adverse event during study indicator	Indicator of whether the participant experienced any adverse events during the study	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02306	C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02300	C02300	Adverse event study intervention action take type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1126-C02303	C02303	Adverse event outcome status	Final status of the participant related to the adverse event	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1100-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	Demographics	False	Epilepsy	Epilepsy
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	General Core	False	Epilepsy	Epilepsy
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant, assigned at birth	Core	General Core	False	Epilepsy	Epilepsy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	General Core	False	Epilepsy	Epilepsy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Epilepsy	Epilepsy
F1100-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	Demographics	False	Epilepsy	Epilepsy
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	General Core	False	Epilepsy	Epilepsy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	General Core	False	Epilepsy	Epilepsy
F1100-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Epilepsy	Epilepsy
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Epilepsy	Epilepsy
F1106-C18946	C18946	Reflex plantar left response other text	The free-text field related to 'Reflex plantar left response result' specifying other text. The results from reflex plantar response on the left side	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14467	C14467	Sensory system abnormality symmetry type	Symmetry of abnormality for sensory system results	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1105-C14430	C14430	Tanner stage	Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair	Supplemental	Physical Exam	False	Epilepsy	Epilepsy
F1106-C14431	C14431	Mental status examined type	Type of mental status assessment performed	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.