CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1114-C18530	C18530	Imaging positron emission tomography ictal localization study type	Type of imaging study of the brain during a seizure using Ictal positron emission tomography (PET)	Supplemental	Positron Emission Tomography (PET) Localization	False	Epilepsy	Epilepsy
F1106-C14437	C14437	Motor exam global assessment type	Type of global assessment for the motor exam	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1123-C59495	C59495	Surgery lesionectomy plus resection extent type	Type of extended resection to remove an anatomical abnormality in the brain during a lesionectomy plus surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59513	C59513	Surgery multi-lobar temporal lobe resection percent estimate remove type	Type of estimated percentage relative to temporal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59517	C59517	Surgery multi-lobar occipital lobe resection estimate type	Type of estimated percentage relative to occipital lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59529	C59529	Surgery multi-lobar percent estimate insula resection remove type	Type of estimated percentage relative to insula tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59525	C59525	Surgery multi-lobar percent estimate frontal lobe resection remove type	Type of estimated percentage relative to frontal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59521	C59521	Surgery multi-lobar percent estimate parietal lobe resection remove type	Type of estimated percent of parietal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1115-C05463	C05463	EEG monitoring type	Type of electroencephalogram (EEG) monitoring	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F3064-C59592	C59592	Imaging abnormality description type	Type of description of imaging abnormalities	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1106-C14454	C14454	Cerebellar or coordination assessment type	Type of cerebellar/coordination assessment performed	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F3064-C14043	C14043	Imaging atrophy tissue loss type	Type of atrophy or tissue loss for which the assessment is being completed	Supplemental	Magnetic Resonance Imaging (MRI)	False	Epilepsy	Epilepsy
F1126-C02300	C02300	Adverse event study intervention action taken type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Event Tracking Log	False	Epilepsy	Epilepsy
F1116-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Anti Epileptic Drug (AED) Log	False	Epilepsy	Epilepsy
F1106-C14456	C14456	Cerebellar or coordination assessment abnormality present type	Type of abnormality found by the cerebellar/coordination assessment	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14465	C14465	Gait abnormality assessment type	Type of abnormal gait	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1123-C14335	C14335	Surgery hemispherectomy type	Type of a surgical procedure where one cerebral hemisphere (half of the brain) is removed or disabled	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1953-C21503	C21503	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest trial score	Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1953-C21495	C21495	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial score	Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1953-C21502	C21502	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest trial number	Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1953-C21486	C21486	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial number	Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1953-C21494	C21494	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial number	Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F1953-C21507	C21507	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span subtest total raw score	Total score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy
F2685-C13212	C13212	Generalized Anxiety Disorder (GAD-7) - total score	Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Epilepsy	Epilepsy
F1953-C21506	C21506	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest total raw score	Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	Supplemental	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.