CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1143-C14116	C14116	Learning disability or attention deficit diagnosis indicator	Whether the participant/subject was ever given formal diagnosis of any learning disability or diagnosed with ADD/ADHD (Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder)	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1115-C14598	C14598	EEG participant alarm push ability indicator	Whether the participant/subject is able to push the alarm at the onset of the seizure, during the seizure, or after the seizure	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1143-C14115	C14115	Family history sinistrality indicator	Whether the participant/subject has a family history of sinistrality, or left-handedness/preference for using the left hand	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1143-C10479	C10479	School special accommodation indicator	Whether the participant/subject ever received special accommodations for school coursework	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1106-C14444	C14444	Muscle tone assessment abnormality indicator	Whether the muscle tone assessment found any abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14447	C14447	Muscle strength abnormality assessment indicator	Whether the muscle strength assessment found any abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14441	C14441	Muscle bulk assessment abnormality indicator	Whether the muscle bulk assessment found any abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1106-C14432	C14432	Mental status exam abnormality indicator	Whether the mental assessment showed abnormal results	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1118-C14421	C14421	Medication plasma concentration no adherence clinically significant indicator	Whether the clinician expects or is able to confirm clinically significant non adherence to the prescribed drug dosing regimen based on the drug plasma concentration results	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1106-C14455	C14455	Cerebellar or coordination assessment abnormality present status	Whether the cerebellar/coordination assessment found abnormalities	Supplemental	Neurological Exam	False	Epilepsy	Epilepsy
F1143-C14119	C14119	Psychological/neuropsychological previous testing indicator	Whether previous psychological/neuropsychological testing was performed on the participant/subject	Supplemental	Neuropsychological Testing Background Information	False	Epilepsy	Epilepsy
F1115-C14596	C14596	EEG ictal available indicator	Whether an ictal electroencephalogram (EEG) is available	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Epilepsy	Epilepsy
F1115-C14621	C14621	EEG variants type	Variants, or out of place signs in electroencephalogram (EEG)	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1115-C14620	C14620	EEG benign variants indicator	Variants in electroencephalogram (EEG) that are benign	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1441-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1118-C14419	C14419	Medication plasma concentration result unit of measure	Unit of measure used for the drug plasma concentration	Supplemental	AED Plasma Concentration	False	Epilepsy	Epilepsy
F1107-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1107-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1107-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1107-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Vital Signs	False	Epilepsy	Epilepsy
F1109-C13968	C13968	Imaging functional magnetic resonance imaging analysis type	Types of functional magnetic resonance imaging (fMRI) analytic methods	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Epilepsy	Epilepsy
F1115-C14552	C14552	EEG activating procedures used type	Type(s) of procedures used to improve the electroencephalogram (EEG) diagnostic yield by inducing or enhancing epileptogenic paroxysms	Supplemental	Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy
F1441-C14552	C14552	EEG activating procedures used type	Type(s) of procedures used to improve the electroencephalogram (EEG) diagnostic yield by inducing or enhancing epileptogenic paroxysms	Supplemental	Short Scalp Electroencephalography (EEG)	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.