CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1123-C59560	C59560	Therapeutic brain stimulation cortical occipital procedure laterality type	Laterality type relative to the occipital area in the brain upon which a cortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59520	C59520	Surgery multi-lobar parietal lobe resection laterality type	Laterality type relative to parietal lobe tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C17643	C17643	Surgical or therapeutic procedure text	The text describing the surgical or therapeutic procedure received by the participant/subject	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59487	C59487	Surgery lesionectomy suspect lesion orbitofrontal laterality type	Laterality type relative to a suspected lesion in the orbitofrontal area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59427	C59427	Surgery diagnostic electrode foramen ovale anatomic site other text	The free-text field related to 'Surgery diagnostic electrode foramen ovale anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59575	C59575	Pathology lesionectomy tumor mixed glioma grade	Description of a mixed glioma tumor based on how abnormal the cancer cells and tissue look under a microscope and how quickly the cancer cells are likely to grow and spread.	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59440	C59440	Surgery diagnostic electrode foramen ovale other laterality type	Laterality type relative to diagnostic foramen ovale electrodes surgical placement in another area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59370	C59370	Surgery diagnostic electrode type other text	The free-text field related to 'Surgery diagnostic electrode type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59463	C59463	Surgery diagnostic electrode other type parietal laterality type	Laterality type relative to surgical placement of another type of diagnostic electrodes in the parietal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59378	C59378	Surgery diagnostic electrode depth insula laterality type	Laterality type relative to diagnostic depth electrodes surgical placement in the insula area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59471	C59471	Surgery anterior temporal lobectomy plus extended resection occipital laterality type	Laterality type relative to resection extended into the occipital area of the brain for an anterior temporal lobectomy plus (ALT+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59386	C59386	Surgery diagnostic electrode subdural parietal laterality type	Laterality type relative to diagnostic subdural electrodes surgical placement in the parietal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59479	C59479	Surgery amygdalohippocampectomy approach anatomic site other text	The free-text field related to 'Surgery amygdalohippocampectomy approach anatomic site' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59395	C59395	Surgery diagnostic electrode epidural frontal laterality type	Laterality type relative to diagnostic epidural electrodes surgical placement in the frontal area of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C18584	C18584	Surgery post-operative altered state complication text	The text describing details for the altered mental status event or complication(s) affecting the nervous system or brain functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14350	C14350	Therapeutic brain stimulation anterior-posterior coordinates value	The value measuring anterior-posterior placement of an electrode during a surgical intervention that uses of a three-dimensional coordinate system to locate small targets inside The body and to perform some action on them	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59569	C59569	Therapeutic brain stimulation subcortical centromedian thalamus procedure laterality type	Laterality type relative to the centromedian thalamus area in the brain upon which a subcortical electrode will focus electrical impulses in therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59529	C59529	Surgery multi-lobar percent estimate insula resection remove type	Type of estimated percentage relative to insula tissue removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14358	C14358	Therapeutic brain stimulation pulse polarity type	The initial orientation or setting for polarity of stimulus pulses for a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14300	C14300	Surgery anterior temporal lobectomy middle temporal gyrus resection estimated length value	The estimated length of tissue (in cm) resected from the middle temporal gyrus of the brain during an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59537	C59537	Surgery multiple subpial transection parietal laterality type	Laterality type relative to the parietal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59497	C59497	Surgery neocortical resection anatomic site	Anatomic location(s) of the suspected anatomical abnormality in the brain to be evaluated during a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14366	C14366	Surgery intraoperative electrocorticogram type	The type of electrocorticogram (ECoG) used during a surgical procedure. ECoG is the practice of using electrodes placed directly on the exposed surface of the brain to record electrical activity from the cerebral cortex	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14308	C14308	Surgery anterior temporal lobectomy plus largest depth of resection estimated value	The largest estimated depth (in cm) of resection into adjacent brain structures that occurred during an extended anterior temporal lobectomy (ATL+) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59545	C59545	Surgery stereotactic lesion perform anatomic site	Anatomic location(s) in the brain where stereotactic lesioning surgical procedure is performed	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.