CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1104-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14483	C14483	Epilepsy syndrome other localization type	Epilepsy syndromes related to other localizations	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14470	C14470	Epilepsy syndrome likelihood present type	Certainty of whether the participant/subject has or had the epilepsy syndrome for the particular age period	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14485	C14485	Epilepsy syndromes distinct confidence level type	Confidence level that the two or more epilepsy syndromes selected as present are distinct syndromes	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14471	C14471	Epilepsy syndrome neonatal onset type	Common epilepsy syndromes with onset in the neonatal period (	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14472	C14472	Epilepsy syndrome age of onset type	Age period during which the epilepsy syndrome first appeared	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C18502	C18502	Epilepsy syndrome unspecified type	Epilepsy syndromes with unspecified relationships that do not fit into other specified categories	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C14473	C14473	Epilepsy syndrome infant onset type	Common epilepsy syndromes for infants, children less than 2 years of age	Supplemental-Highly Recommended	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1104-C18950	C18950	Epilepsy syndrome neonatal onset other text	The free-text field related to 'Epilepsy syndrome neonatal onset type' specifying other text. Common epilepsy syndromes with onset in the neonatal period (	Supplemental	Syndromes by Age of Onset	False	Epilepsy	Epilepsy
F1123-C18918	C18918	Surgery hemispherectomy other text	The free-text field related to 'Surgery hemispherectomy type' specifying other text	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59531	C59531	Surgery hemispherectomy laterality type	Laterality type relative to hemispherectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14355	C14355	Therapeutic brain stimulation pulse frequency	The electrical frequency measured for stimulation pulses, reported in cycles per second, during a therapeutic brain stimulation procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59491	C59491	Surgery lesionectomy suspect lesion insula laterality type	Laterality type relative to a suspected lesion in the insula area of the brain for a lesionectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59539	C59539	Surgery multiple subpial transection dorsolateral frontal laterality type	Laterality type relative to the dorsolateral frontal area of the brain for a multiple subpial transection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14363	C14363	Therapeutic brain stimulation postoperative MRI verification indicator	The indicator for whether electrode stimulus parameters were verified using magnetic resonance imaging (MRI) after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59499	C59499	Surgery neocortical resection occipital laterality type	Laterality type relative to the occipital area of the brain for a neocortical resection surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14305	C14305	Surgery anterior temporal lobectomy plus adjacent resection indicator	The indicator for whether the resection extended to adjacent brain structures beyond the boundaries defined for an anterior temporal lobectomy (ATL) surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59547	C59547	Surgery stereotactic lesion lateral temporal laterality type	Laterality type relative to the lateral temporal area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14371	C14371	Pathology lesionectomy tumor finding type	The type or classification of malignant tumor tissue found during a lesionectomy	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59507	C59507	Surgery neocortical resection largest anterior-posterior extent estimated value	The longest estimated length (in cm) of resection, in the anterior-posterior (AP) dimension, that occurred during surgery to remove dysfunctional brain tissue from specific areas outside the temporal lobes	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14313	C14313	Surgery amygdalohippocampectomy hippocampus estimated length value	The estimated length of tissue (in cm) resected from the hippocampus in the brain during an amygdalohippocampectomy surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59555	C59555	Surgery stereotactic lesion periventricular laterality type	Laterality type relative to the periventricular area of the brain for a stereotactic lesioning surgical procedure	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14379	C14379	Surgery post-operative medical complication type	The type of event or complication(s) affecting the general medical health or functionality that occurred after surgery	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C59515	C59515	Surgery multi-lobar occipital lobe resection indicator	Indicator of whether occipital lobe tissue was removed during surgical resection to remove tissue from multiple regions of the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy
F1123-C14322	C14322	Surgery lesionectomy plus resected tissue estimated volume value	The estimated volume (in cm^3) of tissue resected from adjacent brain structures during a surgery to remove an anatomical abnormality in the brain	Supplemental-Highly Recommended	Surgery and Pathology	False	Epilepsy	Epilepsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.