CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 883

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1102-C58585	C58585	Seizure focal aware motor present status	The status indicating the degree to which a motor/observable focal aware seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58586	C58586	Seizure focal aware non-motor present status	The status indicating the degree to which a non-motor focal aware seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58595	C58595	Seizure focal onset clonic present status	The status indicating the degree to which a focal onset clonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58603	C58603	Seizure epilepsy unknown onset subtype type	The element related to type of unknown onset seizures the participant/subject is experiencing	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58588	C58588	Seizure focal impaired awareness present status	The status indicating the degree to which a focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58596	C58596	Seizure focal onset tonic present status	The status indicating the degree to which a focal onset tonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58604	C58604	Seizure unclassified classification status	The element related to the degree to which unclassified seizures are present	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58589	C58589	Seizure focal impaired awareness motor present status	The status indicating the degree to which a motor/observable focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58597	C58597	Seizure focal onset atonic present status	The status indicating the degree to which a focal onset atonic seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58607	C58607	Seizure epilepsy generalized subtype status	The element related to the degree to which a generalized seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58590	C58590	Seizure focal impaired awareness non-motor present status	The status indicating the degree to which a non-motor focal impaired awareness seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C58598	C58598	Seizure focal onset epileptic spasm present status	The status indicating the degree to which a focal onset epileptic spasm seizure is present	Supplemental	Classification of Seizures	False	Epilepsy	Epilepsy
F1102-C14134	C14134	Data valid through date and time	Date (and time, if applicable and known) the data collected are valid through	Supplemental-Highly Recommended	Classification of Seizures	False	Epilepsy	Epilepsy
F1100-C18732	C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
F1100-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Epilepsy	Epilepsy
F1100-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Epilepsy	Epilepsy
F1100-C00024	C00024	Language primary ISO code	Code (ISO 639-2) for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
F1100-C00025	C00025	Language primary text	Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Epilepsy	Epilepsy
F1100-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Epilepsy	Epilepsy
F1100-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Epilepsy	Epilepsy
F1122-C14530	C14530	Device implanted revision component type	The name of the components of the device that were modified or replaced	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1122-C18565	C18565	Device implanted nerve stimulator revision component type	The modification of implanted nerve stimulator (INS) components including explant, replacement, and repositioning	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1122-C18574	C18574	Device implanted new lead component registration number	The registration number of the new lead component	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy
F1122-C18960	C18960	Device implanted revision or replacement other text	The free-text field related to 'Device implanted revision or replacement reason' specifying other text. The reason for device revision/replacement	Supplemental	Device Revision/Replacement Log	False	Epilepsy	Epilepsy

Displaying 101 - 125 of 883

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.